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A novel approach to sharing all available information from funded health research: the NIHR Journals Library
BACKGROUND: Relevant information on health research must be made publicly available in an accurate, timely and accessible manner if evidence is to inform practice and benefit patient care. Failure to publish research information represents a significant waste of research funds. However, recent studi...
Autores principales: | , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2018
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6069813/ https://www.ncbi.nlm.nih.gov/pubmed/30064444 http://dx.doi.org/10.1186/s12961-018-0339-4 |
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author | Wright, David Williams, Elaine Bryce, Colin le May, Andrée Stein, Ken Milne, Ruairidh Walley, Tom |
author_facet | Wright, David Williams, Elaine Bryce, Colin le May, Andrée Stein, Ken Milne, Ruairidh Walley, Tom |
author_sort | Wright, David |
collection | PubMed |
description | BACKGROUND: Relevant information on health research must be made publicly available in an accurate, timely and accessible manner if evidence is to inform practice and benefit patient care. Failure to publish research information represents a significant waste of research funds. However, recent studies have demonstrated that non-publication and selective or biased reporting remains a significant problem. The role of online publications in rectifying these issues by providing open access to study information is increasingly recognised. OBJECTIVE: This paper details a novel approach to publishing research information developed by the National Institute for Health Research (NIHR), a major funder of health research in the United Kingdom. The NIHR has enhanced its Journals Library (www.journalslibrary.nihr.ac.uk), providing an online repository of information from research funded through five programmes. We describe how the NIHR Journals Library provides a ‘thread’ of relevant information for each study, including protocols, participant information sheets, data linkages, final reports, publications and diverse knowledge products. We also discuss the Library as a ‘living’ resource, one that is updated as each study progresses from inception to completion. Finally, we consider the implications of the Library for the NIHR, other journals and research teams submitting information. CONCLUSION: Openly publishing information from funded research in the NIHR Journals Library serves as a model of knowledge sharing, maximising return on investment and enhancing the usability and replicability of research findings for different evidence-user communities. The Library also supports wider ‘research on research’ ambitions, enabling users to interrogate the repository of NIHR-funded studies, enhancing the understanding of research commissioning, design, dissemination and impact. Video abstract: www.youtube.com/watch?v=8H03uxN_iTE. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (10.1186/s12961-018-0339-4) contains supplementary material, which is available to authorized users. |
format | Online Article Text |
id | pubmed-6069813 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2018 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-60698132018-08-06 A novel approach to sharing all available information from funded health research: the NIHR Journals Library Wright, David Williams, Elaine Bryce, Colin le May, Andrée Stein, Ken Milne, Ruairidh Walley, Tom Health Res Policy Syst Opinion BACKGROUND: Relevant information on health research must be made publicly available in an accurate, timely and accessible manner if evidence is to inform practice and benefit patient care. Failure to publish research information represents a significant waste of research funds. However, recent studies have demonstrated that non-publication and selective or biased reporting remains a significant problem. The role of online publications in rectifying these issues by providing open access to study information is increasingly recognised. OBJECTIVE: This paper details a novel approach to publishing research information developed by the National Institute for Health Research (NIHR), a major funder of health research in the United Kingdom. The NIHR has enhanced its Journals Library (www.journalslibrary.nihr.ac.uk), providing an online repository of information from research funded through five programmes. We describe how the NIHR Journals Library provides a ‘thread’ of relevant information for each study, including protocols, participant information sheets, data linkages, final reports, publications and diverse knowledge products. We also discuss the Library as a ‘living’ resource, one that is updated as each study progresses from inception to completion. Finally, we consider the implications of the Library for the NIHR, other journals and research teams submitting information. CONCLUSION: Openly publishing information from funded research in the NIHR Journals Library serves as a model of knowledge sharing, maximising return on investment and enhancing the usability and replicability of research findings for different evidence-user communities. The Library also supports wider ‘research on research’ ambitions, enabling users to interrogate the repository of NIHR-funded studies, enhancing the understanding of research commissioning, design, dissemination and impact. Video abstract: www.youtube.com/watch?v=8H03uxN_iTE. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (10.1186/s12961-018-0339-4) contains supplementary material, which is available to authorized users. BioMed Central 2018-07-31 /pmc/articles/PMC6069813/ /pubmed/30064444 http://dx.doi.org/10.1186/s12961-018-0339-4 Text en © The Author(s). 2018 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated. |
spellingShingle | Opinion Wright, David Williams, Elaine Bryce, Colin le May, Andrée Stein, Ken Milne, Ruairidh Walley, Tom A novel approach to sharing all available information from funded health research: the NIHR Journals Library |
title | A novel approach to sharing all available information from funded health research: the NIHR Journals Library |
title_full | A novel approach to sharing all available information from funded health research: the NIHR Journals Library |
title_fullStr | A novel approach to sharing all available information from funded health research: the NIHR Journals Library |
title_full_unstemmed | A novel approach to sharing all available information from funded health research: the NIHR Journals Library |
title_short | A novel approach to sharing all available information from funded health research: the NIHR Journals Library |
title_sort | novel approach to sharing all available information from funded health research: the nihr journals library |
topic | Opinion |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6069813/ https://www.ncbi.nlm.nih.gov/pubmed/30064444 http://dx.doi.org/10.1186/s12961-018-0339-4 |
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