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Participatory methods for research prioritization in primary care: an analysis of the World Café approach in Ireland and the USA

BACKGROUND. There are increasing imperatives for patients and members of the public to engage as partners in identifying health research priorities. The use of participatory methods to engage stakeholders in health care in research prioritization is not commonly reported. OBJECTIVE. This article ana...

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Autores principales: MacFarlane, Anne, Galvin, Rose, O’Sullivan, Madeleine, McInerney, Chris, Meagher, Eoghan, Burke, Daniel, LeMaster, Joseph W.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6080563/
https://www.ncbi.nlm.nih.gov/pubmed/27677298
http://dx.doi.org/10.1093/fampra/cmw104
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author MacFarlane, Anne
Galvin, Rose
O’Sullivan, Madeleine
McInerney, Chris
Meagher, Eoghan
Burke, Daniel
LeMaster, Joseph W.
author_facet MacFarlane, Anne
Galvin, Rose
O’Sullivan, Madeleine
McInerney, Chris
Meagher, Eoghan
Burke, Daniel
LeMaster, Joseph W.
author_sort MacFarlane, Anne
collection PubMed
description BACKGROUND. There are increasing imperatives for patients and members of the public to engage as partners in identifying health research priorities. The use of participatory methods to engage stakeholders in health care in research prioritization is not commonly reported. OBJECTIVE. This article analyses the use of World Cafés as a participatory method for research prioritization with marginalized communities in Ireland and the USA. METHODS. The principles of purposeful and snowball sampling were followed in both settings and a diverse range of community and health care stakeholders participated (n = 63 Ireland and n = 55 USA). The principles for a classic World Café were employed but there were novel features in each setting as well. Stewart et al.’s (Patients’ and clinicians’ research priorities. Health Expect 2011; 14: 439–48, conceptual framework for patient engagement was adapted and used to comparatively analyse the strengths and weaknesses of the World Cafés, focusing on agenda setting, engagement with research processes, interactional features and outputs. RESULTS. Design principles for World Cafés were found to align with high-quality patient engagement for research prioritization in both settings. They served to facilitate meaningful collaboration among stakeholder groups in research prioritization (research agenda setting) and explored research priorities (engagement with research). The café ambience, emphasis on hospitality and self-facilitation created an environment for dialogues within and across participating groups (interactional features). There was a commitment to follow-up actions with reference to possible subsequent research (outputs). CONCLUSIONS. The World Café is a valuable, participatory, flexible method that can be used with community and health care stakeholders for research prioritization with marginalized communities.
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spelling pubmed-60805632018-08-09 Participatory methods for research prioritization in primary care: an analysis of the World Café approach in Ireland and the USA MacFarlane, Anne Galvin, Rose O’Sullivan, Madeleine McInerney, Chris Meagher, Eoghan Burke, Daniel LeMaster, Joseph W. Fam Pract Research Methods BACKGROUND. There are increasing imperatives for patients and members of the public to engage as partners in identifying health research priorities. The use of participatory methods to engage stakeholders in health care in research prioritization is not commonly reported. OBJECTIVE. This article analyses the use of World Cafés as a participatory method for research prioritization with marginalized communities in Ireland and the USA. METHODS. The principles of purposeful and snowball sampling were followed in both settings and a diverse range of community and health care stakeholders participated (n = 63 Ireland and n = 55 USA). The principles for a classic World Café were employed but there were novel features in each setting as well. Stewart et al.’s (Patients’ and clinicians’ research priorities. Health Expect 2011; 14: 439–48, conceptual framework for patient engagement was adapted and used to comparatively analyse the strengths and weaknesses of the World Cafés, focusing on agenda setting, engagement with research processes, interactional features and outputs. RESULTS. Design principles for World Cafés were found to align with high-quality patient engagement for research prioritization in both settings. They served to facilitate meaningful collaboration among stakeholder groups in research prioritization (research agenda setting) and explored research priorities (engagement with research). The café ambience, emphasis on hospitality and self-facilitation created an environment for dialogues within and across participating groups (interactional features). There was a commitment to follow-up actions with reference to possible subsequent research (outputs). CONCLUSIONS. The World Café is a valuable, participatory, flexible method that can be used with community and health care stakeholders for research prioritization with marginalized communities. Oxford University Press 2017-06 2016-09-27 /pmc/articles/PMC6080563/ /pubmed/27677298 http://dx.doi.org/10.1093/fampra/cmw104 Text en © The Author 2016. Published by Oxford University Press. http://creativecommons.org/licenses/by-nc/4.0 This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited. For commercial re-use, please contact journals.permissions@oup.com
spellingShingle Research Methods
MacFarlane, Anne
Galvin, Rose
O’Sullivan, Madeleine
McInerney, Chris
Meagher, Eoghan
Burke, Daniel
LeMaster, Joseph W.
Participatory methods for research prioritization in primary care: an analysis of the World Café approach in Ireland and the USA
title Participatory methods for research prioritization in primary care: an analysis of the World Café approach in Ireland and the USA
title_full Participatory methods for research prioritization in primary care: an analysis of the World Café approach in Ireland and the USA
title_fullStr Participatory methods for research prioritization in primary care: an analysis of the World Café approach in Ireland and the USA
title_full_unstemmed Participatory methods for research prioritization in primary care: an analysis of the World Café approach in Ireland and the USA
title_short Participatory methods for research prioritization in primary care: an analysis of the World Café approach in Ireland and the USA
title_sort participatory methods for research prioritization in primary care: an analysis of the world café approach in ireland and the usa
topic Research Methods
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6080563/
https://www.ncbi.nlm.nih.gov/pubmed/27677298
http://dx.doi.org/10.1093/fampra/cmw104
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