Cargando…

Challenges experienced by mothers caring for children with cerebral palsy in Zambia

BACKGROUND: Mothers caring for children with disability experience a number of challenges. AIM: The aim of the study was to explore the challenges that mothers who cared for children with cerebral palsy (CP) living in Zambia experienced. METHODS: During a qualitative study the experiences of 16 conv...

Descripción completa

Detalles Bibliográficos
Autores principales: Singogo, Carol, Mweshi, Margaret, Rhoda, Anthea
Formato: Online Artículo Texto
Lenguaje:English
Publicado: AOSIS OpenJournals 2015
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6093109/
https://www.ncbi.nlm.nih.gov/pubmed/30135879
http://dx.doi.org/10.4102/sajp.v71i1.274
_version_ 1783347650169405440
author Singogo, Carol
Mweshi, Margaret
Rhoda, Anthea
author_facet Singogo, Carol
Mweshi, Margaret
Rhoda, Anthea
author_sort Singogo, Carol
collection PubMed
description BACKGROUND: Mothers caring for children with disability experience a number of challenges. AIM: The aim of the study was to explore the challenges that mothers who cared for children with cerebral palsy (CP) living in Zambia experienced. METHODS: During a qualitative study the experiences of 16 conveniently sampled mothers of children with CP, from the Ndola district in Zambia, were explored by means of interviews. The responses were thematically analysed. All the necessary ethical considerations were upheld. RESULTS: Mothers experienced social isolation and marital problems, as well as negative attitudes from family, friends, community members and health care professionals. The physical environment created access challenges because of a lack of sidewalks, ramps, functioning lifts and small indoor spaces. CONCLUSION: Mothers of children with CP feel socially isolated owing to a lack of support from family, community members, and health care providers. This social isolation was exacerbated by attitudes of others towards the mothers; it was felt that mothers were responsible for their children's condition. Mothers also experienced marital problems as a result of having a child with CP.
format Online
Article
Text
id pubmed-6093109
institution National Center for Biotechnology Information
language English
publishDate 2015
publisher AOSIS OpenJournals
record_format MEDLINE/PubMed
spelling pubmed-60931092018-08-22 Challenges experienced by mothers caring for children with cerebral palsy in Zambia Singogo, Carol Mweshi, Margaret Rhoda, Anthea S Afr J Physiother Original Research BACKGROUND: Mothers caring for children with disability experience a number of challenges. AIM: The aim of the study was to explore the challenges that mothers who cared for children with cerebral palsy (CP) living in Zambia experienced. METHODS: During a qualitative study the experiences of 16 conveniently sampled mothers of children with CP, from the Ndola district in Zambia, were explored by means of interviews. The responses were thematically analysed. All the necessary ethical considerations were upheld. RESULTS: Mothers experienced social isolation and marital problems, as well as negative attitudes from family, friends, community members and health care professionals. The physical environment created access challenges because of a lack of sidewalks, ramps, functioning lifts and small indoor spaces. CONCLUSION: Mothers of children with CP feel socially isolated owing to a lack of support from family, community members, and health care providers. This social isolation was exacerbated by attitudes of others towards the mothers; it was felt that mothers were responsible for their children's condition. Mothers also experienced marital problems as a result of having a child with CP. AOSIS OpenJournals 2015-11-10 /pmc/articles/PMC6093109/ /pubmed/30135879 http://dx.doi.org/10.4102/sajp.v71i1.274 Text en © 2015. The Authors http://creativecommons.org/licenses/by/2.0/ Licensee: AOSIS OpenJournals. This work is licensed under the Creative Commons Attribution License.
spellingShingle Original Research
Singogo, Carol
Mweshi, Margaret
Rhoda, Anthea
Challenges experienced by mothers caring for children with cerebral palsy in Zambia
title Challenges experienced by mothers caring for children with cerebral palsy in Zambia
title_full Challenges experienced by mothers caring for children with cerebral palsy in Zambia
title_fullStr Challenges experienced by mothers caring for children with cerebral palsy in Zambia
title_full_unstemmed Challenges experienced by mothers caring for children with cerebral palsy in Zambia
title_short Challenges experienced by mothers caring for children with cerebral palsy in Zambia
title_sort challenges experienced by mothers caring for children with cerebral palsy in zambia
topic Original Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6093109/
https://www.ncbi.nlm.nih.gov/pubmed/30135879
http://dx.doi.org/10.4102/sajp.v71i1.274
work_keys_str_mv AT singogocarol challengesexperiencedbymotherscaringforchildrenwithcerebralpalsyinzambia
AT mweshimargaret challengesexperiencedbymotherscaringforchildrenwithcerebralpalsyinzambia
AT rhodaanthea challengesexperiencedbymotherscaringforchildrenwithcerebralpalsyinzambia