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European Reference Network For Rare Vascular Diseases (VASCERN) Outcome Measures For Hereditary Haemorrhagic Telangiectasia (HHT)

Hereditary haemorrhagic telangiectasia (HHT) is a multisystemic vascular dysplasia that leads to nosebleeds, anaemia due to blood loss, and arteriovenous malformations (AVMs) in organs such as the lungs, liver and brain. HHT is estimated to affect 85,000 European citizens, but most health care provi...

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Detalles Bibliográficos
Autores principales:	Shovlin, Claire L., Buscarini, Elisabetta, Kjeldsen, Anette D., Mager, Hans Jurgen, Sabba, Carlo, Droege, Freya, Geisthoff, Urban, Ugolini, Sara, Dupuis-Girod, Sophie
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2018
Materias:	Position Statement
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6094583/ https://www.ncbi.nlm.nih.gov/pubmed/30111344 http://dx.doi.org/10.1186/s13023-018-0850-2

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