Cargando…

Patient-reported outcome measures for use in clinical trials of SLE: a review

Inclusion of patient-reported outcomes is important in SLE clinical trials as they allow capture of the benefits of a proposed intervention in areas deemed pertinent by patients. We aimed to compare the measurement properties of health-related quality of life (HRQoL) measures used in adults with SLE...

Descripción completa

Detalles Bibliográficos
Autores principales:	Izadi, Zara, Gandrup, Julie, Katz, Patricia P, Yazdany, Jinoos
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BMJ Publishing Group 2018
Materias:	Review
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6109821/ https://www.ncbi.nlm.nih.gov/pubmed/30167315 http://dx.doi.org/10.1136/lupus-2018-000279

Ejemplares similares

Is frailty a relevant concept in SLE?
por: Katz, Patricia P, et al.
Publicado: (2017)

Challenges in understanding the role of pregnancy morbidity in cardiovascular risk in SLE
por: Simard, Julia F, et al.
Publicado: (2014)

Capturing a Patient-Reported Measure of Physical Function Through an Online Electronic Health Record Patient Portal in an Ambulatory Clinic: Implementation Study
por: Li, Jing, et al.
Publicado: (2018)

Practical Considerations for Developing Clinical Natural Language Processing Systems for Population Health Management and Measurement
por: Tamang, Suzanne, et al.
Publicado: (2023)

Socioeconomic Disparities in Functional Status in a National Sample of Patients With Rheumatoid Arthritis
por: Izadi, Zara, et al.
Publicado: (2021)

The Relationship Between Electronic Health Record System and Performance on Quality Measures in the American College of Rheumatology’s Rheumatology Informatics System for Effectiveness (RISE) Registry: Observational Study
por: Hammam, Nevin, et al.
Publicado: (2021)

Correction: Patient-reported outcome measures for use in clinical trials of SLE: a review
Publicado: (2018)

Estimates of Responsiveness, Minimally Important Differences, and Patient Acceptable Symptom State in Five Patient‐Reported Outcomes Measurement Information System Short Forms in Systemic Lupus Erythematosus
por: Katz, Patricia, et al.
Publicado: (2019)

Racial and ethnic differences in COVID-19 outcomes: a call to action
por: Robinson, Philip C, et al.
Publicado: (2022)

Factors Associated With Hospitalization and Death After COVID‐19 Diagnosis Among Patients With Rheumatic Disease: An Analysis of Veterans Affairs Data
por: Schmajuk, Gabriela, et al.
Publicado: (2021)

Implementation of disease activity measurement for rheumatoid arthritis patients in an academic rheumatology clinic
por: Bays, Alison, et al.
Publicado: (2016)

Epidemiology and treatment of Behçet’s disease in the USA: insights from the Rheumatology Informatics System for Effectiveness (RISE) Registry with a comparison with other published cohorts from endemic regions
por: Hammam, Nevin, et al.
Publicado: (2021)

Peer Support in Rheumatic Diseases: A Narrative Literature Review
por: Karp, Nathan, et al.
Publicado: (2023)

Which outcome measures in SLE clinical trials best reflect medical judgment?
por: Thanou, Aikaterini, et al.
Publicado: (2014)

Patient and clinician perspectives on a patient‐facing dashboard that visualizes patient reported outcomes in rheumatoid arthritis
por: Liu, Lucy H., et al.
Publicado: (2020)

Demographic Characteristics of Participants in Rheumatoid Arthritis Randomized Clinical Trials: A Systematic Review
por: Strait, Adrienne, et al.
Publicado: (2019)

Patient-Centered Outcomes Research Institute (PCORI) multisite project to develop treatment decision aids for racial/ethnic minorities with lupus nephritis
por: Yazdany, Jinoos, et al.
Publicado: (2014)

Concordance and discordance in SLE clinical trial outcome measures: analysis of three anifrolumab phase 2/3 trials
por: Bruce, Ian N, et al.
Publicado: (2022)

The COVID-19 Global Rheumatology Alliance: collecting data in a pandemic
por: Robinson, Philip C., et al.
Publicado: (2020)

Are patient ratings of interactions with providers and health plans associated with technical quality of care in systemic lupus erythematosus?
por: Yelin, Edward, et al.
Publicado: (2014)

The Impact of Asthma and Chronic Obstructive Pulmonary Disease (COPD) on Patient‐Reported Outcomes in Systemic Lupus Erythematosus (SLE)
por: Katz, Patricia, et al.
Publicado: (2021)

Patient-Reported Outcomes for Quality of Life in SLE: Essential in Clinical Trials and Ready for Routine Care
por: Nguyen, Matthew H., et al.
Publicado: (2021)

The racial/ethnic and sociocultural aspects of the pandemic in rheumatology
por: Taylor, Tiffany, et al.
Publicado: (2021)

COVID-19 in people with rheumatic diseases: risks, outcomes, treatment considerations
por: Grainger, Rebecca, et al.
Publicado: (2022)

Approaches for estimating minimal clinically important differences in systemic lupus erythematosus
por: Rai, Sharan K, et al.
Publicado: (2015)

National Lupus Hospitalization Trends Reveal Rising Rates of Herpes Zoster and Declines in Pneumocystis Pneumonia
por: Murray, Sara G., et al.
Publicado: (2016)

Treatment of SLE: bridging the gap from clinical trials to the clinic - a meeting report
por: Calabrese, Leonard H
Publicado: (2013)

Engaging African ancestry participants in SLE clinical trials
por: Anjorin, Aderike, et al.
Publicado: (2018)

Evaluating the Use of Glucocorticoids Among Belimumab‐Treated Patients With Systemic Lupus Erythematosus in Real‐World Settings Using the Rheumatology Informatics System for Effectiveness Registry
por: Hammam, Nevin, et al.
Publicado: (2022)

Assessment of a Deep Learning Model Based on Electronic Health Record Data to Forecast Clinical Outcomes in Patients With Rheumatoid Arthritis
por: Norgeot, Beau, et al.
Publicado: (2019)

Do associations between education and obesity vary depending on the measure of obesity used? A systematic literature review and meta-analysis
por: Witkam, Rozemarijn, et al.
Publicado: (2021)

Minorities with lupus nephritis and medications: a study of facilitators to medication decision-making
por: Singh, Jasvinder A., et al.
Publicado: (2015)

What to Expect When Expecting With Systemic Lupus Erythematosus (SLE): A Population‐Based Study of Maternal and Fetal Outcomes in SLE and Pre‐SLE
por: Arkema, Elizabeth V., et al.
Publicado: (2016)

Clinical comparisons between previously diagnosed SLE and newly diagnosed SLE by kidney biopsy
por: Tonsawan, Pantipa, et al.
Publicado: (2020)

Presentation of SLE in UK primary care using the Clinical Practice Research Datalink
por: Nightingale, Alison L, et al.
Publicado: (2017)

SLE clinical trials: impact of missing data on estimating treatment effects
por: Kim, Mimi, et al.
Publicado: (2019)

Extraarticular Manifestations of Rheumatoid Arthritis in a Multiethnic Cohort of Predominantly Hispanic and Asian Patients
por: Richman, Nicole C., et al.
Publicado: (2013)

Type I interferon, anti-interferon antibodies, and COVID-19
por: Calabrese, Leonard H, et al.
Publicado: (2021)

Differences in Longitudinal Disease Activity Between Research Cohort and Noncohort Participants with Rheumatoid Arthritis Using Electronic Health Record Data
por: Gianfrancesco, Milena A., et al.
Publicado: (2019)

Provision of preventive health care in systemic lupus erythematosus: data from a large observational cohort study
por: Yazdany, Jinoos, et al.
Publicado: (2010)

Cannot write session to /tmp/vufind_sessions/sess_s3va87aq4i8bj7gegsqiovs69r