Health Care Transition Experiences of Males with Childhood-onset Duchenne and Becker Muscular Dystrophy: Findings from the Muscular Dystrophy Surveillance Tracking and Research Network (MD STARnet) Health Care Transitions and Other Life Experiences Survey

INTRODUCTION: As the proportion of males with Duchenne muscular dystrophy (DMD) surviving into adulthood increases, more information is needed regarding their health care transition planning, an essential process for adolescents and young adults with DMD. The objective of this study was to describe...

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Detalles Bibliográficos
Autores principales: Paramsothy, Pangaja, Herron, Adrienne R., Lamb, Molly M., Kinnett, Kathi, Wolff, Jodi, Yang, Michele L., Oleszek, Joyce, Pandya, Shree, Kennedy, Annie, Cooney, Darryl, Fox, Deborah, Sheehan, Daniel
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2018
Materias:
Muscular Dystrophy
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6112277/
https://www.ncbi.nlm.nih.gov/pubmed/30210936
http://dx.doi.org/10.1371/currents.md.7de8a1c6798d7a48d38ea09bd624e1cd

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6112277/
https://www.ncbi.nlm.nih.gov/pubmed/30210936
http://dx.doi.org/10.1371/currents.md.7de8a1c6798d7a48d38ea09bd624e1cd

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