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Defining good health and care from the perspective of persons with multimorbidity: results from a qualitative study of focus groups in eight European countries

OBJECTIVES: The prevalence of multimorbidity is increasing in many Western countries. Persons with multimorbidity often experience a lack of alignment in the care that multiple health and social care organisations provide. As a response, integrated care programmes are appearing. It is a challenge to...

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Autores principales: Leijten, Fenna R M, Hoedemakers, Maaike, Struckmann, Verena, Kraus, Markus, Cheraghi-Sohi, Sudeh, Zemplényi, Antal, Ervik, Rune, Vallvé, Claudia, Huiĉ, Mirjana, Czypionka, Thomas, Boland, Melinde, Rutten-van Mölken, Maureen P M H
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6119413/
https://www.ncbi.nlm.nih.gov/pubmed/30166294
http://dx.doi.org/10.1136/bmjopen-2017-021072
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author Leijten, Fenna R M
Hoedemakers, Maaike
Struckmann, Verena
Kraus, Markus
Cheraghi-Sohi, Sudeh
Zemplényi, Antal
Ervik, Rune
Vallvé, Claudia
Huiĉ, Mirjana
Czypionka, Thomas
Boland, Melinde
Rutten-van Mölken, Maureen P M H
author_facet Leijten, Fenna R M
Hoedemakers, Maaike
Struckmann, Verena
Kraus, Markus
Cheraghi-Sohi, Sudeh
Zemplényi, Antal
Ervik, Rune
Vallvé, Claudia
Huiĉ, Mirjana
Czypionka, Thomas
Boland, Melinde
Rutten-van Mölken, Maureen P M H
author_sort Leijten, Fenna R M
collection PubMed
description OBJECTIVES: The prevalence of multimorbidity is increasing in many Western countries. Persons with multimorbidity often experience a lack of alignment in the care that multiple health and social care organisations provide. As a response, integrated care programmes are appearing. It is a challenge to evaluate these and to choose appropriate outcome measures. Focus groups were held with persons with multimorbidity in eight European countries to better understand what good health and a good care process mean to them and to identify what they find most important in each. METHODS: In 2016, eight focus groups were organised with persons with multimorbidity in: Austria, Croatia, Germany, Hungary, the Netherlands, Norway, Spain and the UK (total n=58). Each focus group followed the same two-part procedure: (1) defining (A) good health and well-being and (B) a good care process, and (2) group discussion on prioritising the most important concepts derived from part one and from a list extracted from the literature. Inductive and deductive analyses were done. RESULTS: Overall, the participants in all focus groups concentrated more on the care process than on health. Persons with multimorbidity defined good health as being able to conduct and plan normal daily activities, having meaningful social relationships and accepting the current situation. Absence of shame, fear and/or stigma, being able to enjoy life and overall psychological well-being were also important facets of good health. Being approached holistically by care professionals was said to be vital to a good care process. Continuity of care and trusting professionals were also described as important. Across countries, little variation in health definitions were found, but variation in defining a good care process was seen. CONCLUSION: A variety of health outcomes that entail well-being, social and psychological facets and especially experience with care outcomes should be included when evaluating integrated care programmes for persons with multimorbidity.
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spelling pubmed-61194132018-09-04 Defining good health and care from the perspective of persons with multimorbidity: results from a qualitative study of focus groups in eight European countries Leijten, Fenna R M Hoedemakers, Maaike Struckmann, Verena Kraus, Markus Cheraghi-Sohi, Sudeh Zemplényi, Antal Ervik, Rune Vallvé, Claudia Huiĉ, Mirjana Czypionka, Thomas Boland, Melinde Rutten-van Mölken, Maureen P M H BMJ Open Patient-Centred Medicine OBJECTIVES: The prevalence of multimorbidity is increasing in many Western countries. Persons with multimorbidity often experience a lack of alignment in the care that multiple health and social care organisations provide. As a response, integrated care programmes are appearing. It is a challenge to evaluate these and to choose appropriate outcome measures. Focus groups were held with persons with multimorbidity in eight European countries to better understand what good health and a good care process mean to them and to identify what they find most important in each. METHODS: In 2016, eight focus groups were organised with persons with multimorbidity in: Austria, Croatia, Germany, Hungary, the Netherlands, Norway, Spain and the UK (total n=58). Each focus group followed the same two-part procedure: (1) defining (A) good health and well-being and (B) a good care process, and (2) group discussion on prioritising the most important concepts derived from part one and from a list extracted from the literature. Inductive and deductive analyses were done. RESULTS: Overall, the participants in all focus groups concentrated more on the care process than on health. Persons with multimorbidity defined good health as being able to conduct and plan normal daily activities, having meaningful social relationships and accepting the current situation. Absence of shame, fear and/or stigma, being able to enjoy life and overall psychological well-being were also important facets of good health. Being approached holistically by care professionals was said to be vital to a good care process. Continuity of care and trusting professionals were also described as important. Across countries, little variation in health definitions were found, but variation in defining a good care process was seen. CONCLUSION: A variety of health outcomes that entail well-being, social and psychological facets and especially experience with care outcomes should be included when evaluating integrated care programmes for persons with multimorbidity. BMJ Publishing Group 2018-08-30 /pmc/articles/PMC6119413/ /pubmed/30166294 http://dx.doi.org/10.1136/bmjopen-2017-021072 Text en © Author(s) (or their employer(s)) 2018. Re-use permitted under CC BY. Published by BMJ. This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made. See: https://creativecommons.org/licenses/by/4.0/.
spellingShingle Patient-Centred Medicine
Leijten, Fenna R M
Hoedemakers, Maaike
Struckmann, Verena
Kraus, Markus
Cheraghi-Sohi, Sudeh
Zemplényi, Antal
Ervik, Rune
Vallvé, Claudia
Huiĉ, Mirjana
Czypionka, Thomas
Boland, Melinde
Rutten-van Mölken, Maureen P M H
Defining good health and care from the perspective of persons with multimorbidity: results from a qualitative study of focus groups in eight European countries
title Defining good health and care from the perspective of persons with multimorbidity: results from a qualitative study of focus groups in eight European countries
title_full Defining good health and care from the perspective of persons with multimorbidity: results from a qualitative study of focus groups in eight European countries
title_fullStr Defining good health and care from the perspective of persons with multimorbidity: results from a qualitative study of focus groups in eight European countries
title_full_unstemmed Defining good health and care from the perspective of persons with multimorbidity: results from a qualitative study of focus groups in eight European countries
title_short Defining good health and care from the perspective of persons with multimorbidity: results from a qualitative study of focus groups in eight European countries
title_sort defining good health and care from the perspective of persons with multimorbidity: results from a qualitative study of focus groups in eight european countries
topic Patient-Centred Medicine
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6119413/
https://www.ncbi.nlm.nih.gov/pubmed/30166294
http://dx.doi.org/10.1136/bmjopen-2017-021072
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