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Qualitative user evaluation of a revised pharmacogenetic educational toolkit

INTRODUCTION: Pharmacogenetic (PGx) testing is a leading application for personalized and precision medicine; however, there are barriers, including limited provider and patient understanding, which affect its uptake. There is a need for tools that can enhance the patient and provider experience wit...

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Autores principales: Mills, Rachel, Haga, Susanne B
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Dove Medical Press 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6128278/
https://www.ncbi.nlm.nih.gov/pubmed/30214267
http://dx.doi.org/10.2147/PGPM.S169648
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author Mills, Rachel
Haga, Susanne B
author_facet Mills, Rachel
Haga, Susanne B
author_sort Mills, Rachel
collection PubMed
description INTRODUCTION: Pharmacogenetic (PGx) testing is a leading application for personalized and precision medicine; however, there are barriers, including limited provider and patient understanding, which affect its uptake. There is a need for tools that can enhance the patient and provider experience with testing and promoting the shared and informed decision-making. MATERIALS AND METHODS: In this study, we sought to gather additional feedback on a PGx toolkit comprised of four educational tools that had been previously evaluated through an online survey by pharmacists. Specifically, we conducted semi-structured interviews with pharmacists and members of the public regarding their understanding and utility of the toolkit and its individual components. RESULTS: Participants found three of the four toolkit components, a test information sheet, flipbook, and results sheet, to be useful and important. The fourth component, results card, was viewed less favorably. Participants differed in their preference for medical jargon and detailed results nomenclature (namely star * alleles). CONCLUSION: User input during the development of educational materials is essential for optimizing utilization, effectiveness, and comprehension.
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spelling pubmed-61282782018-09-13 Qualitative user evaluation of a revised pharmacogenetic educational toolkit Mills, Rachel Haga, Susanne B Pharmgenomics Pers Med Original Research INTRODUCTION: Pharmacogenetic (PGx) testing is a leading application for personalized and precision medicine; however, there are barriers, including limited provider and patient understanding, which affect its uptake. There is a need for tools that can enhance the patient and provider experience with testing and promoting the shared and informed decision-making. MATERIALS AND METHODS: In this study, we sought to gather additional feedback on a PGx toolkit comprised of four educational tools that had been previously evaluated through an online survey by pharmacists. Specifically, we conducted semi-structured interviews with pharmacists and members of the public regarding their understanding and utility of the toolkit and its individual components. RESULTS: Participants found three of the four toolkit components, a test information sheet, flipbook, and results sheet, to be useful and important. The fourth component, results card, was viewed less favorably. Participants differed in their preference for medical jargon and detailed results nomenclature (namely star * alleles). CONCLUSION: User input during the development of educational materials is essential for optimizing utilization, effectiveness, and comprehension. Dove Medical Press 2018-09-04 /pmc/articles/PMC6128278/ /pubmed/30214267 http://dx.doi.org/10.2147/PGPM.S169648 Text en © 2018 Mills and Haga. This work is published and licensed by Dove Medical Press Limited The full terms of this license are available at https://www.dovepress.com/terms.php and incorporate the Creative Commons Attribution – Non Commercial (unported, v3.0) License (http://creativecommons.org/licenses/by-nc/3.0/). By accessing the work you hereby accept the Terms. Non-commercial uses of the work are permitted without any further permission from Dove Medical Press Limited, provided the work is properly attributed.
spellingShingle Original Research
Mills, Rachel
Haga, Susanne B
Qualitative user evaluation of a revised pharmacogenetic educational toolkit
title Qualitative user evaluation of a revised pharmacogenetic educational toolkit
title_full Qualitative user evaluation of a revised pharmacogenetic educational toolkit
title_fullStr Qualitative user evaluation of a revised pharmacogenetic educational toolkit
title_full_unstemmed Qualitative user evaluation of a revised pharmacogenetic educational toolkit
title_short Qualitative user evaluation of a revised pharmacogenetic educational toolkit
title_sort qualitative user evaluation of a revised pharmacogenetic educational toolkit
topic Original Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6128278/
https://www.ncbi.nlm.nih.gov/pubmed/30214267
http://dx.doi.org/10.2147/PGPM.S169648
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