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Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta

On the occasion of the 13th International Conference on Osteogenesis imperfecta in August 2017 an expert panel was convened to develop an international consensus paper regarding physical rehabilitation in children and adolescents with Osteogenesis imperfecta. The experts were chosen based on their c...

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Autores principales: Mueller, Brigitte, Engelbert, Raoul, Baratta-Ziska, Frances, Bartels, Bart, Blanc, Nicole, Brizola, Evelise, Fraschini, Paolo, Hill, Claire, Marr, Caroline, Mills, Lisa, Montpetit, Kathleen, Pacey, Verity, Molina, Miguel Rodriguez, Schuuring, Marleen, Verhille, Chantal, de Vries, Olga, Yeung, Eric Hiu Kwong, Semler, Oliver
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6131938/
https://www.ncbi.nlm.nih.gov/pubmed/30201006
http://dx.doi.org/10.1186/s13023-018-0905-4
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author Mueller, Brigitte
Engelbert, Raoul
Baratta-Ziska, Frances
Bartels, Bart
Blanc, Nicole
Brizola, Evelise
Fraschini, Paolo
Hill, Claire
Marr, Caroline
Mills, Lisa
Montpetit, Kathleen
Pacey, Verity
Molina, Miguel Rodriguez
Schuuring, Marleen
Verhille, Chantal
de Vries, Olga
Yeung, Eric Hiu Kwong
Semler, Oliver
author_facet Mueller, Brigitte
Engelbert, Raoul
Baratta-Ziska, Frances
Bartels, Bart
Blanc, Nicole
Brizola, Evelise
Fraschini, Paolo
Hill, Claire
Marr, Caroline
Mills, Lisa
Montpetit, Kathleen
Pacey, Verity
Molina, Miguel Rodriguez
Schuuring, Marleen
Verhille, Chantal
de Vries, Olga
Yeung, Eric Hiu Kwong
Semler, Oliver
author_sort Mueller, Brigitte
collection PubMed
description On the occasion of the 13th International Conference on Osteogenesis imperfecta in August 2017 an expert panel was convened to develop an international consensus paper regarding physical rehabilitation in children and adolescents with Osteogenesis imperfecta. The experts were chosen based on their clinical experience with children with osteogenesis imperfecta and were identified by sending out questionnaires to specialized centers and patient organizations in 26 different countries. The final expert-group included 16 representatives (12 physiotherapists, two occupational therapists and two medical doctors) from 14 countries. Within the framework of a collation of personal experiences and the results of a literature search, the participating physiotherapists, occupational therapists and medical doctors formulated 17 expert-statements on physical rehabilitation in patients aged 0–18 years with osteogenesis imperfecta.
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spelling pubmed-61319382018-09-13 Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta Mueller, Brigitte Engelbert, Raoul Baratta-Ziska, Frances Bartels, Bart Blanc, Nicole Brizola, Evelise Fraschini, Paolo Hill, Claire Marr, Caroline Mills, Lisa Montpetit, Kathleen Pacey, Verity Molina, Miguel Rodriguez Schuuring, Marleen Verhille, Chantal de Vries, Olga Yeung, Eric Hiu Kwong Semler, Oliver Orphanet J Rare Dis Position Statement On the occasion of the 13th International Conference on Osteogenesis imperfecta in August 2017 an expert panel was convened to develop an international consensus paper regarding physical rehabilitation in children and adolescents with Osteogenesis imperfecta. The experts were chosen based on their clinical experience with children with osteogenesis imperfecta and were identified by sending out questionnaires to specialized centers and patient organizations in 26 different countries. The final expert-group included 16 representatives (12 physiotherapists, two occupational therapists and two medical doctors) from 14 countries. Within the framework of a collation of personal experiences and the results of a literature search, the participating physiotherapists, occupational therapists and medical doctors formulated 17 expert-statements on physical rehabilitation in patients aged 0–18 years with osteogenesis imperfecta. BioMed Central 2018-09-10 /pmc/articles/PMC6131938/ /pubmed/30201006 http://dx.doi.org/10.1186/s13023-018-0905-4 Text en © The Author(s). 2018 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Position Statement
Mueller, Brigitte
Engelbert, Raoul
Baratta-Ziska, Frances
Bartels, Bart
Blanc, Nicole
Brizola, Evelise
Fraschini, Paolo
Hill, Claire
Marr, Caroline
Mills, Lisa
Montpetit, Kathleen
Pacey, Verity
Molina, Miguel Rodriguez
Schuuring, Marleen
Verhille, Chantal
de Vries, Olga
Yeung, Eric Hiu Kwong
Semler, Oliver
Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta
title Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta
title_full Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta
title_fullStr Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta
title_full_unstemmed Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta
title_short Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta
title_sort consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta
topic Position Statement
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6131938/
https://www.ncbi.nlm.nih.gov/pubmed/30201006
http://dx.doi.org/10.1186/s13023-018-0905-4
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