Patient Perspective on Acute Intermittent Porphyria with Frequent Attacks: A Disease with Intermittent and Chronic Manifestations

OBJECTIVE: Acute intermittent porphyria is a rare metabolic disorder that affects heme synthesis. Patients with acute intermittent porphyria may experience acute debilitating neurovisceral attacks that require frequent hospitalizations and negatively impact quality of life. Although clinical aspects...

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Detalles Bibliográficos
Autores principales: Simon, Amy, Pompilus, Farrah, Querbes, William, Wei, Alex, Strzok, Sara, Penz, Craig, Howe, Desiree Lyon, Hungate, Jessica R., Kim, Jae B., Agarwal, Sonalee, Marquis, Patrick
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2018
Materias:
Original Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6132435/
https://www.ncbi.nlm.nih.gov/pubmed/29915990
http://dx.doi.org/10.1007/s40271-018-0319-3

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