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Australia: regulating genomic data sharing to promote public trust

The regulation of genomic data sharing in Australia is a confusing mix of common law, legislation, ethical guidelines, and codes of practice. Beyond privacy laws, which only apply to genomic data that meets the definition of personal information, the key regulatory lever is the National Health and M...

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Detalles Bibliográficos
Autores principales: Eckstein, Lisa, Chalmers, Donald, Critchley, Christine, Jeanneret, Ruthie, McWhirter, Rebekah, Nielsen, Jane, Otlowski, Margaret, Nicol, Dianne
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6132638/
https://www.ncbi.nlm.nih.gov/pubmed/30116956
http://dx.doi.org/10.1007/s00439-018-1914-z