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Australia: regulating genomic data sharing to promote public trust
The regulation of genomic data sharing in Australia is a confusing mix of common law, legislation, ethical guidelines, and codes of practice. Beyond privacy laws, which only apply to genomic data that meets the definition of personal information, the key regulatory lever is the National Health and M...
Autores principales: | Eckstein, Lisa, Chalmers, Donald, Critchley, Christine, Jeanneret, Ruthie, McWhirter, Rebekah, Nielsen, Jane, Otlowski, Margaret, Nicol, Dianne |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer Berlin Heidelberg
2018
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6132638/ https://www.ncbi.nlm.nih.gov/pubmed/30116956 http://dx.doi.org/10.1007/s00439-018-1914-z |
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