Cargando…
Ethical aspects of sudden cardiac arrest research using observational data: a narrative review
Sudden cardiac arrest (SCA) accounts for half of all cardiac deaths in Europe. In recent years, large-scale SCA registries have been set up to enable observational studies into risk factors and the effect of treatment approaches. The increasing scale and variety of data sources, coupled with the imp...
Autores principales: | Bak, Marieke A. R., Blom, Marieke T., Tan, Hanno L., Willems, Dick L. |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2018
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6136218/ https://www.ncbi.nlm.nih.gov/pubmed/30208954 http://dx.doi.org/10.1186/s13054-018-2153-3 |
Ejemplares similares
-
Health data research on sudden cardiac arrest: perspectives of survivors and their next-of-kin
por: Bak, Marieke A. R., et al.
Publicado: (2021) -
Data-driven sudden cardiac arrest research in Europe: Experts’ perspectives on ethical challenges and governance strategies
por: Bak, Marieke A.R., et al.
Publicado: (2023) -
Towards trust-based governance of health data research
por: Bak, Marieke A. R., et al.
Publicado: (2023) -
Stakeholders’ perspectives on the post-mortem use of genetic and health-related data for research: a systematic review
por: Bak, Marieke A. R., et al.
Publicado: (2019) -
Contextual Exceptionalism After Death: An Information Ethics Approach to Post-Mortem Privacy in Health Data Research
por: Bak, Marieke A. R., et al.
Publicado: (2022)