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Participation experiences of people with deafblindness or dual sensory loss: A scoping review of global deafblind literature
BACKGROUND: Deafblindness, also known as dual sensory loss, is a varying combination of visual and hearing impairment in the same individual. Interest in this topic has increased recently due to evidence suggesting an increase in prevalence of this condition among older adults. Persons with deafblin...
Autores principales: | , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Public Library of Science
2018
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6136783/ https://www.ncbi.nlm.nih.gov/pubmed/30212504 http://dx.doi.org/10.1371/journal.pone.0203772 |
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author | Jaiswal, Atul Aldersey, Heather Wittich, Walter Mirza, Mansha Finlayson, Marcia |
author_facet | Jaiswal, Atul Aldersey, Heather Wittich, Walter Mirza, Mansha Finlayson, Marcia |
author_sort | Jaiswal, Atul |
collection | PubMed |
description | BACKGROUND: Deafblindness, also known as dual sensory loss, is a varying combination of visual and hearing impairment in the same individual. Interest in this topic has increased recently due to evidence suggesting an increase in prevalence of this condition among older adults. Persons with deafblindness frequently experience participation barriers and social isolation. Developing an understanding of their experiences can inform the design of programs and policies to enhance participation of people with deafblindness in society. OBJECTIVE: To identify and summarize available research literature on participation experiences of people with deafblindness or dual sensory loss. METHODS: A comprehensive literature search of eight databases (CINAHL/EBSCO, Embase, ERIC, Global Health, MEDLINE, ProQuest, PsycINFO, PubMed) was performed in accordance with the Preferred Reporting Items for Systematic Reviews (PRISMA) during January 2017 and last updated in June 2017. In addition, non-peer reviewed (grey) literature was also retrieved in the form of online published reports of research projects by 16 deafblind-specific organizations across the globe. To be included, sources had to be published after 1990, had persons with deafblindness as the focal population, and focused on their participation experiences. RESULTS: A total 1172 sources were identified of which 54 studies were included. The findings reveal that persons with deafblindness, regardless of origin of their impairment, experience difficulty in communication, mobility, daily living functioning, and social interactions. While these experiences may vary between individuals with congenital versus acquired conditions, they generally feel socially isolated, insecure and uncertain about their future. CONCLUSION: Participation experiences of persons with deafblindness are shaped by dynamic interactions between personal factors (such as onset and type of impairments) and environmental influences (such as attitude, technology, and supports). A better understanding of participation experiences may help professionals in placing emphasis on affected participation domains to design services to enhance participation of people with deafblindness. |
format | Online Article Text |
id | pubmed-6136783 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2018 |
publisher | Public Library of Science |
record_format | MEDLINE/PubMed |
spelling | pubmed-61367832018-09-27 Participation experiences of people with deafblindness or dual sensory loss: A scoping review of global deafblind literature Jaiswal, Atul Aldersey, Heather Wittich, Walter Mirza, Mansha Finlayson, Marcia PLoS One Research Article BACKGROUND: Deafblindness, also known as dual sensory loss, is a varying combination of visual and hearing impairment in the same individual. Interest in this topic has increased recently due to evidence suggesting an increase in prevalence of this condition among older adults. Persons with deafblindness frequently experience participation barriers and social isolation. Developing an understanding of their experiences can inform the design of programs and policies to enhance participation of people with deafblindness in society. OBJECTIVE: To identify and summarize available research literature on participation experiences of people with deafblindness or dual sensory loss. METHODS: A comprehensive literature search of eight databases (CINAHL/EBSCO, Embase, ERIC, Global Health, MEDLINE, ProQuest, PsycINFO, PubMed) was performed in accordance with the Preferred Reporting Items for Systematic Reviews (PRISMA) during January 2017 and last updated in June 2017. In addition, non-peer reviewed (grey) literature was also retrieved in the form of online published reports of research projects by 16 deafblind-specific organizations across the globe. To be included, sources had to be published after 1990, had persons with deafblindness as the focal population, and focused on their participation experiences. RESULTS: A total 1172 sources were identified of which 54 studies were included. The findings reveal that persons with deafblindness, regardless of origin of their impairment, experience difficulty in communication, mobility, daily living functioning, and social interactions. While these experiences may vary between individuals with congenital versus acquired conditions, they generally feel socially isolated, insecure and uncertain about their future. CONCLUSION: Participation experiences of persons with deafblindness are shaped by dynamic interactions between personal factors (such as onset and type of impairments) and environmental influences (such as attitude, technology, and supports). A better understanding of participation experiences may help professionals in placing emphasis on affected participation domains to design services to enhance participation of people with deafblindness. Public Library of Science 2018-09-13 /pmc/articles/PMC6136783/ /pubmed/30212504 http://dx.doi.org/10.1371/journal.pone.0203772 Text en © 2018 Jaiswal et al http://creativecommons.org/licenses/by/4.0/ This is an open access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/) , which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. |
spellingShingle | Research Article Jaiswal, Atul Aldersey, Heather Wittich, Walter Mirza, Mansha Finlayson, Marcia Participation experiences of people with deafblindness or dual sensory loss: A scoping review of global deafblind literature |
title | Participation experiences of people with deafblindness or dual sensory loss: A scoping review of global deafblind literature |
title_full | Participation experiences of people with deafblindness or dual sensory loss: A scoping review of global deafblind literature |
title_fullStr | Participation experiences of people with deafblindness or dual sensory loss: A scoping review of global deafblind literature |
title_full_unstemmed | Participation experiences of people with deafblindness or dual sensory loss: A scoping review of global deafblind literature |
title_short | Participation experiences of people with deafblindness or dual sensory loss: A scoping review of global deafblind literature |
title_sort | participation experiences of people with deafblindness or dual sensory loss: a scoping review of global deafblind literature |
topic | Research Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6136783/ https://www.ncbi.nlm.nih.gov/pubmed/30212504 http://dx.doi.org/10.1371/journal.pone.0203772 |
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