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The attitude of blood donors towards the use of their samples and information in biomedical research

INTRODUCTION: Blood donation is important for saving human life as blood is used in surgeries, blood transfusion and for clinical use. The mission of blood banks can be extended to include medical research. The objective of the study was to determine and assess the attitude of blood donors in Gaza t...

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Autores principales: Al-Hindi, Adnan I, Khabour, Omar F, Alzoubi, Karem H, Al-Sawalha, Nour A
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Dove Medical Press 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6162995/
https://www.ncbi.nlm.nih.gov/pubmed/30288135
http://dx.doi.org/10.2147/JBM.S178047
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author Al-Hindi, Adnan I
Khabour, Omar F
Alzoubi, Karem H
Al-Sawalha, Nour A
author_facet Al-Hindi, Adnan I
Khabour, Omar F
Alzoubi, Karem H
Al-Sawalha, Nour A
author_sort Al-Hindi, Adnan I
collection PubMed
description INTRODUCTION: Blood donation is important for saving human life as blood is used in surgeries, blood transfusion and for clinical use. The mission of blood banks can be extended to include medical research. The objective of the study was to determine and assess the attitude of blood donors in Gaza towards the use of their blood samples and medical data for biomedical research and the associated ethical issues. METHODS: The study is cross-sectional and questionnaire-based and involved 616 blood donors from the Gaza Strip. RESULTS: The majority of participants (86%) showed a positive attitude towards donating blood for medical research, including genetic studies. About two-thirds of participants agreed that informed consent should be taken before conducting medical research on the donated blood. A similar percentage also accepted linking of their health information to the donated blood samples. On the other hand, about 38% of participants disapproved of sharing of their data with third parties such as health insurance companies and health authorities. Finally, 10% of participants stated that their future blood donation decision would be affected if they knew that part of their donated blood was to be used in research without taking their permission. CONCLUSION: Blood donors in Gaza Strip have a positive attitude toward using their donated blood for medical research. More awareness is required with respect to the importance of informed consent and access to biomedical information.
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spelling pubmed-61629952018-10-04 The attitude of blood donors towards the use of their samples and information in biomedical research Al-Hindi, Adnan I Khabour, Omar F Alzoubi, Karem H Al-Sawalha, Nour A J Blood Med Original Research INTRODUCTION: Blood donation is important for saving human life as blood is used in surgeries, blood transfusion and for clinical use. The mission of blood banks can be extended to include medical research. The objective of the study was to determine and assess the attitude of blood donors in Gaza towards the use of their blood samples and medical data for biomedical research and the associated ethical issues. METHODS: The study is cross-sectional and questionnaire-based and involved 616 blood donors from the Gaza Strip. RESULTS: The majority of participants (86%) showed a positive attitude towards donating blood for medical research, including genetic studies. About two-thirds of participants agreed that informed consent should be taken before conducting medical research on the donated blood. A similar percentage also accepted linking of their health information to the donated blood samples. On the other hand, about 38% of participants disapproved of sharing of their data with third parties such as health insurance companies and health authorities. Finally, 10% of participants stated that their future blood donation decision would be affected if they knew that part of their donated blood was to be used in research without taking their permission. CONCLUSION: Blood donors in Gaza Strip have a positive attitude toward using their donated blood for medical research. More awareness is required with respect to the importance of informed consent and access to biomedical information. Dove Medical Press 2018-09-25 /pmc/articles/PMC6162995/ /pubmed/30288135 http://dx.doi.org/10.2147/JBM.S178047 Text en © 2018 Al-Hindi et al. This work is published and licensed by Dove Medical Press Limited The full terms of this license are available at https://www.dovepress.com/terms.php and incorporate the Creative Commons Attribution – Non Commercial (unported, v3.0) License (http://creativecommons.org/licenses/by-nc/3.0/). By accessing the work you hereby accept the Terms. Non-commercial uses of the work are permitted without any further permission from Dove Medical Press Limited, provided the work is properly attributed.
spellingShingle Original Research
Al-Hindi, Adnan I
Khabour, Omar F
Alzoubi, Karem H
Al-Sawalha, Nour A
The attitude of blood donors towards the use of their samples and information in biomedical research
title The attitude of blood donors towards the use of their samples and information in biomedical research
title_full The attitude of blood donors towards the use of their samples and information in biomedical research
title_fullStr The attitude of blood donors towards the use of their samples and information in biomedical research
title_full_unstemmed The attitude of blood donors towards the use of their samples and information in biomedical research
title_short The attitude of blood donors towards the use of their samples and information in biomedical research
title_sort attitude of blood donors towards the use of their samples and information in biomedical research
topic Original Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6162995/
https://www.ncbi.nlm.nih.gov/pubmed/30288135
http://dx.doi.org/10.2147/JBM.S178047
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