Autism Diagnosis in the United Kingdom: Perspectives of Autistic Adults, Parents and Professionals

Accessing an autism diagnosis is a key milestone, both for an individual and their family. Using a qualitative methodology, the current study examined the views and experiences of ten autistic adults, ten parents of children on the autism spectrum, and ten professionals involved in autism diagnosis,...

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Detalles Bibliográficos
Autores principales: Crane, Laura, Batty, Richard, Adeyinka, Hanna, Goddard, Lorna, Henry, Lucy A., Hill, Elisabeth L.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2018
Materias:
Original Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6182717/
https://www.ncbi.nlm.nih.gov/pubmed/29948530
http://dx.doi.org/10.1007/s10803-018-3639-1
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author Crane, Laura
Batty, Richard
Adeyinka, Hanna
Goddard, Lorna
Henry, Lucy A.
Hill, Elisabeth L.
author_facet Crane, Laura
Batty, Richard
Adeyinka, Hanna
Goddard, Lorna
Henry, Lucy A.
Hill, Elisabeth L.
author_sort Crane, Laura
collection PubMed
description Accessing an autism diagnosis is a key milestone, both for an individual and their family. Using a qualitative methodology, the current study examined the views and experiences of ten autistic adults, ten parents of children on the autism spectrum, and ten professionals involved in autism diagnosis, all based in the United Kingdom (UK). Interviewing these 30 respondents about the diagnostic process and subsequent support options, the goal was to identify aspects of the diagnostic process that are working well, and areas in which improvements are needed. Using thematic analysis, three key themes were identified: the process of understanding and accepting autism; multiple barriers to satisfaction with the diagnostic process; and inadequate post-diagnostic support provision.
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spelling pubmed-61827172018-10-24 Autism Diagnosis in the United Kingdom: Perspectives of Autistic Adults, Parents and Professionals Crane, Laura Batty, Richard Adeyinka, Hanna Goddard, Lorna Henry, Lucy A. Hill, Elisabeth L. J Autism Dev Disord Original Paper Accessing an autism diagnosis is a key milestone, both for an individual and their family. Using a qualitative methodology, the current study examined the views and experiences of ten autistic adults, ten parents of children on the autism spectrum, and ten professionals involved in autism diagnosis, all based in the United Kingdom (UK). Interviewing these 30 respondents about the diagnostic process and subsequent support options, the goal was to identify aspects of the diagnostic process that are working well, and areas in which improvements are needed. Using thematic analysis, three key themes were identified: the process of understanding and accepting autism; multiple barriers to satisfaction with the diagnostic process; and inadequate post-diagnostic support provision. Springer US 2018-06-12 2018 /pmc/articles/PMC6182717/ /pubmed/29948530 http://dx.doi.org/10.1007/s10803-018-3639-1 Text en © The Author(s) 2018 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.
spellingShingle Original Paper
Crane, Laura
Batty, Richard
Adeyinka, Hanna
Goddard, Lorna
Henry, Lucy A.
Hill, Elisabeth L.
Autism Diagnosis in the United Kingdom: Perspectives of Autistic Adults, Parents and Professionals
title Autism Diagnosis in the United Kingdom: Perspectives of Autistic Adults, Parents and Professionals
title_full Autism Diagnosis in the United Kingdom: Perspectives of Autistic Adults, Parents and Professionals
title_fullStr Autism Diagnosis in the United Kingdom: Perspectives of Autistic Adults, Parents and Professionals
title_full_unstemmed Autism Diagnosis in the United Kingdom: Perspectives of Autistic Adults, Parents and Professionals
title_short Autism Diagnosis in the United Kingdom: Perspectives of Autistic Adults, Parents and Professionals
title_sort autism diagnosis in the united kingdom: perspectives of autistic adults, parents and professionals
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6182717/
https://www.ncbi.nlm.nih.gov/pubmed/29948530
http://dx.doi.org/10.1007/s10803-018-3639-1
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