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Challenges in administrative data linkage for research

Linkage of population-based administrative data is a valuable tool for combining detailed individual-level information from different sources for research. While not a substitute for classical studies based on primary data collection, analyses of linked administrative data can answer questions that...

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Autores principales: Harron, Katie, Dibben, Chris, Boyd, James, Hjern, Anders, Azimaee, Mahmoud, Barreto, Mauricio L, Goldstein, Harvey
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6187070/
https://www.ncbi.nlm.nih.gov/pubmed/30381794
http://dx.doi.org/10.1177/2053951717745678
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author Harron, Katie
Dibben, Chris
Boyd, James
Hjern, Anders
Azimaee, Mahmoud
Barreto, Mauricio L
Goldstein, Harvey
author_facet Harron, Katie
Dibben, Chris
Boyd, James
Hjern, Anders
Azimaee, Mahmoud
Barreto, Mauricio L
Goldstein, Harvey
author_sort Harron, Katie
collection PubMed
description Linkage of population-based administrative data is a valuable tool for combining detailed individual-level information from different sources for research. While not a substitute for classical studies based on primary data collection, analyses of linked administrative data can answer questions that require large sample sizes or detailed data on hard-to-reach populations, and generate evidence with a high level of external validity and applicability for policy making. There are unique challenges in the appropriate research use of linked administrative data, for example with respect to bias from linkage errors where records cannot be linked or are linked together incorrectly. For confidentiality and other reasons, the separation of data linkage processes and analysis of linked data is generally regarded as best practice. However, the ‘black box’ of data linkage can make it difficult for researchers to judge the reliability of the resulting linked data for their required purposes. This article aims to provide an overview of challenges in linking administrative data for research. We aim to increase understanding of the implications of (i) the data linkage environment and privacy preservation; (ii) the linkage process itself (including data preparation, and deterministic and probabilistic linkage methods) and (iii) linkage quality and potential bias in linked data. We draw on examples from a number of countries to illustrate a range of approaches for data linkage in different contexts.
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spelling pubmed-61870702018-10-29 Challenges in administrative data linkage for research Harron, Katie Dibben, Chris Boyd, James Hjern, Anders Azimaee, Mahmoud Barreto, Mauricio L Goldstein, Harvey Big Data Soc Original Research Article Linkage of population-based administrative data is a valuable tool for combining detailed individual-level information from different sources for research. While not a substitute for classical studies based on primary data collection, analyses of linked administrative data can answer questions that require large sample sizes or detailed data on hard-to-reach populations, and generate evidence with a high level of external validity and applicability for policy making. There are unique challenges in the appropriate research use of linked administrative data, for example with respect to bias from linkage errors where records cannot be linked or are linked together incorrectly. For confidentiality and other reasons, the separation of data linkage processes and analysis of linked data is generally regarded as best practice. However, the ‘black box’ of data linkage can make it difficult for researchers to judge the reliability of the resulting linked data for their required purposes. This article aims to provide an overview of challenges in linking administrative data for research. We aim to increase understanding of the implications of (i) the data linkage environment and privacy preservation; (ii) the linkage process itself (including data preparation, and deterministic and probabilistic linkage methods) and (iii) linkage quality and potential bias in linked data. We draw on examples from a number of countries to illustrate a range of approaches for data linkage in different contexts. SAGE Publications 2017-12-05 /pmc/articles/PMC6187070/ /pubmed/30381794 http://dx.doi.org/10.1177/2053951717745678 Text en © The Author(s) 2017 http://creativecommons.org/licenses/by/4.0/ This article is distributed under the terms of the Creative Commons Attribution 4.0 License (http://www.creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Original Research Article
Harron, Katie
Dibben, Chris
Boyd, James
Hjern, Anders
Azimaee, Mahmoud
Barreto, Mauricio L
Goldstein, Harvey
Challenges in administrative data linkage for research
title Challenges in administrative data linkage for research
title_full Challenges in administrative data linkage for research
title_fullStr Challenges in administrative data linkage for research
title_full_unstemmed Challenges in administrative data linkage for research
title_short Challenges in administrative data linkage for research
title_sort challenges in administrative data linkage for research
topic Original Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6187070/
https://www.ncbi.nlm.nih.gov/pubmed/30381794
http://dx.doi.org/10.1177/2053951717745678
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