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How to incorporate patient and public perspectives into the design and conduct of research

International government guidance recommends patient and public involvement (PPI) to improve the relevance and quality of research.  PPI is defined as research being carried out ‘with’ or ‘by’ patients and members of the public rather than ‘to’, ‘about’ or ‘for’ them ( http://www.invo.org.uk/). Pati...

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Autores principales: Hoddinott, Pat, Pollock, Alex, O'Cathain, Alicia, Boyer, Isabel, Taylor, Jane, MacDonald, Chris, Oliver, Sandy, Donovan, Jenny L.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: F1000 Research Limited 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6192439/
https://www.ncbi.nlm.nih.gov/pubmed/30364075
http://dx.doi.org/10.12688/f1000research.15162.1
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author Hoddinott, Pat
Pollock, Alex
O'Cathain, Alicia
Boyer, Isabel
Taylor, Jane
MacDonald, Chris
Oliver, Sandy
Donovan, Jenny L.
author_facet Hoddinott, Pat
Pollock, Alex
O'Cathain, Alicia
Boyer, Isabel
Taylor, Jane
MacDonald, Chris
Oliver, Sandy
Donovan, Jenny L.
author_sort Hoddinott, Pat
collection PubMed
description International government guidance recommends patient and public involvement (PPI) to improve the relevance and quality of research.  PPI is defined as research being carried out ‘with’ or ‘by’ patients and members of the public rather than ‘to’, ‘about’ or ‘for’ them ( http://www.invo.org.uk/). Patient involvement is different from collecting data from patients as participants.  Ethical considerations also differ.  PPI is about patients actively contributing through discussion to decisions about research design, acceptability, relevance, conduct and governance from study conception to dissemination.  Occasionally patients lead or do research.  The research methods of PPI range from informal discussions to partnership research approaches such as action research, co-production and co-learning. This article discusses how researchers can involve patients when they are applying for research funding and considers some opportunities and pitfalls.  It reviews research funder requirements, draws on the literature and our collective experiences as clinicians, patients, academics and members of UK funding panels.
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spelling pubmed-61924392018-10-24 How to incorporate patient and public perspectives into the design and conduct of research Hoddinott, Pat Pollock, Alex O'Cathain, Alicia Boyer, Isabel Taylor, Jane MacDonald, Chris Oliver, Sandy Donovan, Jenny L. F1000Res Opinion Article International government guidance recommends patient and public involvement (PPI) to improve the relevance and quality of research.  PPI is defined as research being carried out ‘with’ or ‘by’ patients and members of the public rather than ‘to’, ‘about’ or ‘for’ them ( http://www.invo.org.uk/). Patient involvement is different from collecting data from patients as participants.  Ethical considerations also differ.  PPI is about patients actively contributing through discussion to decisions about research design, acceptability, relevance, conduct and governance from study conception to dissemination.  Occasionally patients lead or do research.  The research methods of PPI range from informal discussions to partnership research approaches such as action research, co-production and co-learning. This article discusses how researchers can involve patients when they are applying for research funding and considers some opportunities and pitfalls.  It reviews research funder requirements, draws on the literature and our collective experiences as clinicians, patients, academics and members of UK funding panels. F1000 Research Limited 2018-06-18 /pmc/articles/PMC6192439/ /pubmed/30364075 http://dx.doi.org/10.12688/f1000research.15162.1 Text en Copyright: © 2018 Hoddinott P et al. http://creativecommons.org/licenses/by/4.0/ This is an open access article distributed under the terms of the Creative Commons Attribution Licence, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Opinion Article
Hoddinott, Pat
Pollock, Alex
O'Cathain, Alicia
Boyer, Isabel
Taylor, Jane
MacDonald, Chris
Oliver, Sandy
Donovan, Jenny L.
How to incorporate patient and public perspectives into the design and conduct of research
title How to incorporate patient and public perspectives into the design and conduct of research
title_full How to incorporate patient and public perspectives into the design and conduct of research
title_fullStr How to incorporate patient and public perspectives into the design and conduct of research
title_full_unstemmed How to incorporate patient and public perspectives into the design and conduct of research
title_short How to incorporate patient and public perspectives into the design and conduct of research
title_sort how to incorporate patient and public perspectives into the design and conduct of research
topic Opinion Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6192439/
https://www.ncbi.nlm.nih.gov/pubmed/30364075
http://dx.doi.org/10.12688/f1000research.15162.1
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