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Complexities and dilemmas in community consultation on the design of a research project logo in Malawi

BACKGROUND: Community engagement on research design is widely highlighted as an important approach for ethical research. This article reports the experience of consulting with communities on the logo used for an influenza study in Malawi. The logo was designed for use on badges worn by study researc...

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Autores principales: Nyirenda, Deborah, Gooding, Kate, Lora, Wezzie, Kumwenda, Moses, McMorrow, Meredith, Everett, Dean, Desmond, Nicola
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6193680/
https://www.ncbi.nlm.nih.gov/pubmed/30335816
http://dx.doi.org/10.1371/journal.pone.0205737
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author Nyirenda, Deborah
Gooding, Kate
Lora, Wezzie
Kumwenda, Moses
McMorrow, Meredith
Everett, Dean
Desmond, Nicola
author_facet Nyirenda, Deborah
Gooding, Kate
Lora, Wezzie
Kumwenda, Moses
McMorrow, Meredith
Everett, Dean
Desmond, Nicola
author_sort Nyirenda, Deborah
collection PubMed
description BACKGROUND: Community engagement on research design is widely highlighted as an important approach for ethical research. This article reports the experience of consulting with communities on the logo used for an influenza study in Malawi. The logo was designed for use on badges worn by study researchers, participant information sheets and other project documents, and could affect perceptions of the study and consequent engagement in the research. METHODS: Four focus group discussions were conducted with populations targeted by the influenza study: pregnant women, people with HIV, mothers and community members. The focus groups incorporated a participatory matrix exercise focusing on key themes emerging from the discussions such as: attractiveness, comprehension, acceptability and suggestions for improvement. Findings from the focus groups were analyzed according to these key themes. RESULTS: The consultation highlighted important benefits of discussion with communities on research design, including providing new perspectives and helping to avoid harm. For example, people living with HIV felt that one of the possible logos could increase stigma within communities. The experience also indicated potential challenges of consultation. In particular, there were contrasting perspectives among the groups, such that the consultation did not provide a clear answer about which logo should be selected. CONCLUSIONS: Our experience adds to current evidence on community engagement by reporting on an area where there is less discussion of community consultation for design of a study logo. The consultation exercise reaffirmed the value of community engagement, but also the difficulty of relying on a brief consultation for decision-making in research design. Further ethical guidance is required on how to negotiate contradictory views during consultations.
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spelling pubmed-61936802018-11-05 Complexities and dilemmas in community consultation on the design of a research project logo in Malawi Nyirenda, Deborah Gooding, Kate Lora, Wezzie Kumwenda, Moses McMorrow, Meredith Everett, Dean Desmond, Nicola PLoS One Research Article BACKGROUND: Community engagement on research design is widely highlighted as an important approach for ethical research. This article reports the experience of consulting with communities on the logo used for an influenza study in Malawi. The logo was designed for use on badges worn by study researchers, participant information sheets and other project documents, and could affect perceptions of the study and consequent engagement in the research. METHODS: Four focus group discussions were conducted with populations targeted by the influenza study: pregnant women, people with HIV, mothers and community members. The focus groups incorporated a participatory matrix exercise focusing on key themes emerging from the discussions such as: attractiveness, comprehension, acceptability and suggestions for improvement. Findings from the focus groups were analyzed according to these key themes. RESULTS: The consultation highlighted important benefits of discussion with communities on research design, including providing new perspectives and helping to avoid harm. For example, people living with HIV felt that one of the possible logos could increase stigma within communities. The experience also indicated potential challenges of consultation. In particular, there were contrasting perspectives among the groups, such that the consultation did not provide a clear answer about which logo should be selected. CONCLUSIONS: Our experience adds to current evidence on community engagement by reporting on an area where there is less discussion of community consultation for design of a study logo. The consultation exercise reaffirmed the value of community engagement, but also the difficulty of relying on a brief consultation for decision-making in research design. Further ethical guidance is required on how to negotiate contradictory views during consultations. Public Library of Science 2018-10-18 /pmc/articles/PMC6193680/ /pubmed/30335816 http://dx.doi.org/10.1371/journal.pone.0205737 Text en https://creativecommons.org/publicdomain/zero/1.0/ This is an open access article, free of all copyright, and may be freely reproduced, distributed, transmitted, modified, built upon, or otherwise used by anyone for any lawful purpose. The work is made available under the Creative Commons CC0 (https://creativecommons.org/publicdomain/zero/1.0/) public domain dedication.
spellingShingle Research Article
Nyirenda, Deborah
Gooding, Kate
Lora, Wezzie
Kumwenda, Moses
McMorrow, Meredith
Everett, Dean
Desmond, Nicola
Complexities and dilemmas in community consultation on the design of a research project logo in Malawi
title Complexities and dilemmas in community consultation on the design of a research project logo in Malawi
title_full Complexities and dilemmas in community consultation on the design of a research project logo in Malawi
title_fullStr Complexities and dilemmas in community consultation on the design of a research project logo in Malawi
title_full_unstemmed Complexities and dilemmas in community consultation on the design of a research project logo in Malawi
title_short Complexities and dilemmas in community consultation on the design of a research project logo in Malawi
title_sort complexities and dilemmas in community consultation on the design of a research project logo in malawi
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6193680/
https://www.ncbi.nlm.nih.gov/pubmed/30335816
http://dx.doi.org/10.1371/journal.pone.0205737
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