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Living with Phenylketonuria: Lessons from the PKU community
INTRODUCTION: We report the practical, social and psychological issues of living with phenylketonuria (PKU) from one of the largest surveys that has been completed by both adults with PKU and parents/caregivers of children. METHODS: In the UK, parents/caregivers of children and adults with PKU were...
| Autores principales: | , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
Elsevier
2018
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6198120/ https://www.ncbi.nlm.nih.gov/pubmed/30364670 http://dx.doi.org/10.1016/j.ymgmr.2018.10.002 |