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Factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder
CONTEXT: Since autism spectrum disorder (ASD) is a lifelong disease and because of its nature, the negative effects of the disease on the quality of life (QoL) of caregivers as well as patients are incontrovertible. AIMS: It was aimed to evaluate the effect of the variables related to both parents a...
Autores principales: | , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Medknow Publications & Media Pvt Ltd
2018
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6201674/ https://www.ncbi.nlm.nih.gov/pubmed/30405252 http://dx.doi.org/10.4103/psychiatry.IndianJPsychiatry_300_17 |
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author | Özgür, Börte Gürbüz Aksu, Hatice Eser, Erhan |
author_facet | Özgür, Börte Gürbüz Aksu, Hatice Eser, Erhan |
author_sort | Özgür, Börte Gürbüz |
collection | PubMed |
description | CONTEXT: Since autism spectrum disorder (ASD) is a lifelong disease and because of its nature, the negative effects of the disease on the quality of life (QoL) of caregivers as well as patients are incontrovertible. AIMS: It was aimed to evaluate the effect of the variables related to both parents and children on the QoL scores of the parents of the children with ASD. SETTINGS AND DESIGN: This is a causality analysis study. SUBJECTS AND METHODS: Questionnaire on sociodemographic/disease-related variables, QoL in Autism Questionnaire-Parent Version (QoLA-P), autism behavior checklist and Clinical Global Impression scale were assessed of 162 patients with ASD. STATISTICAL ANALYSIS USED: Unpaired t- test, Mann–Whitney U test, Kruskal–Wallis test, and one-way ANOVA test were used for comparing groups. The parameters found to be statistically significant for QoLA-P in different analyses were included as the independent variable in the logistic regression analysis. The backward (variable elimination) model was selected as the model in the analysis. RESULTS: The causality has been established may be stated as the severity of autism, the presence of psychiatric disorder in the mother/father, attendance of the child at school, duration since the diagnosis of autism, and the child's medication use. CONCLUSIONS: Autism affects the QoL of caregivers. The intervention of treatment by considering the factors that affect the QoL positively or negatively may increase the QoL of caregivers. |
format | Online Article Text |
id | pubmed-6201674 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2018 |
publisher | Medknow Publications & Media Pvt Ltd |
record_format | MEDLINE/PubMed |
spelling | pubmed-62016742018-11-07 Factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder Özgür, Börte Gürbüz Aksu, Hatice Eser, Erhan Indian J Psychiatry Original Article CONTEXT: Since autism spectrum disorder (ASD) is a lifelong disease and because of its nature, the negative effects of the disease on the quality of life (QoL) of caregivers as well as patients are incontrovertible. AIMS: It was aimed to evaluate the effect of the variables related to both parents and children on the QoL scores of the parents of the children with ASD. SETTINGS AND DESIGN: This is a causality analysis study. SUBJECTS AND METHODS: Questionnaire on sociodemographic/disease-related variables, QoL in Autism Questionnaire-Parent Version (QoLA-P), autism behavior checklist and Clinical Global Impression scale were assessed of 162 patients with ASD. STATISTICAL ANALYSIS USED: Unpaired t- test, Mann–Whitney U test, Kruskal–Wallis test, and one-way ANOVA test were used for comparing groups. The parameters found to be statistically significant for QoLA-P in different analyses were included as the independent variable in the logistic regression analysis. The backward (variable elimination) model was selected as the model in the analysis. RESULTS: The causality has been established may be stated as the severity of autism, the presence of psychiatric disorder in the mother/father, attendance of the child at school, duration since the diagnosis of autism, and the child's medication use. CONCLUSIONS: Autism affects the QoL of caregivers. The intervention of treatment by considering the factors that affect the QoL positively or negatively may increase the QoL of caregivers. Medknow Publications & Media Pvt Ltd 2018 /pmc/articles/PMC6201674/ /pubmed/30405252 http://dx.doi.org/10.4103/psychiatry.IndianJPsychiatry_300_17 Text en Copyright: © 2018 Indian Journal of Psychiatry http://creativecommons.org/licenses/by-nc-sa/4.0 This is an open access journal, and articles are distributed under the terms of the Creative Commons Attribution-NonCommercial-ShareAlike 4.0 License, which allows others to remix, tweak, and build upon the work non-commercially, as long as appropriate credit is given and the new creations are licensed under the identical terms. |
spellingShingle | Original Article Özgür, Börte Gürbüz Aksu, Hatice Eser, Erhan Factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder |
title | Factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder |
title_full | Factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder |
title_fullStr | Factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder |
title_full_unstemmed | Factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder |
title_short | Factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder |
title_sort | factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder |
topic | Original Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6201674/ https://www.ncbi.nlm.nih.gov/pubmed/30405252 http://dx.doi.org/10.4103/psychiatry.IndianJPsychiatry_300_17 |
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