Cargando…

Factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder

CONTEXT: Since autism spectrum disorder (ASD) is a lifelong disease and because of its nature, the negative effects of the disease on the quality of life (QoL) of caregivers as well as patients are incontrovertible. AIMS: It was aimed to evaluate the effect of the variables related to both parents a...

Descripción completa

Detalles Bibliográficos
Autores principales: Özgür, Börte Gürbüz, Aksu, Hatice, Eser, Erhan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Medknow Publications & Media Pvt Ltd 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6201674/
https://www.ncbi.nlm.nih.gov/pubmed/30405252
http://dx.doi.org/10.4103/psychiatry.IndianJPsychiatry_300_17
_version_ 1783365557737750528
author Özgür, Börte Gürbüz
Aksu, Hatice
Eser, Erhan
author_facet Özgür, Börte Gürbüz
Aksu, Hatice
Eser, Erhan
author_sort Özgür, Börte Gürbüz
collection PubMed
description CONTEXT: Since autism spectrum disorder (ASD) is a lifelong disease and because of its nature, the negative effects of the disease on the quality of life (QoL) of caregivers as well as patients are incontrovertible. AIMS: It was aimed to evaluate the effect of the variables related to both parents and children on the QoL scores of the parents of the children with ASD. SETTINGS AND DESIGN: This is a causality analysis study. SUBJECTS AND METHODS: Questionnaire on sociodemographic/disease-related variables, QoL in Autism Questionnaire-Parent Version (QoLA-P), autism behavior checklist and Clinical Global Impression scale were assessed of 162 patients with ASD. STATISTICAL ANALYSIS USED: Unpaired t- test, Mann–Whitney U test, Kruskal–Wallis test, and one-way ANOVA test were used for comparing groups. The parameters found to be statistically significant for QoLA-P in different analyses were included as the independent variable in the logistic regression analysis. The backward (variable elimination) model was selected as the model in the analysis. RESULTS: The causality has been established may be stated as the severity of autism, the presence of psychiatric disorder in the mother/father, attendance of the child at school, duration since the diagnosis of autism, and the child's medication use. CONCLUSIONS: Autism affects the QoL of caregivers. The intervention of treatment by considering the factors that affect the QoL positively or negatively may increase the QoL of caregivers.
format Online
Article
Text
id pubmed-6201674
institution National Center for Biotechnology Information
language English
publishDate 2018
publisher Medknow Publications & Media Pvt Ltd
record_format MEDLINE/PubMed
spelling pubmed-62016742018-11-07 Factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder Özgür, Börte Gürbüz Aksu, Hatice Eser, Erhan Indian J Psychiatry Original Article CONTEXT: Since autism spectrum disorder (ASD) is a lifelong disease and because of its nature, the negative effects of the disease on the quality of life (QoL) of caregivers as well as patients are incontrovertible. AIMS: It was aimed to evaluate the effect of the variables related to both parents and children on the QoL scores of the parents of the children with ASD. SETTINGS AND DESIGN: This is a causality analysis study. SUBJECTS AND METHODS: Questionnaire on sociodemographic/disease-related variables, QoL in Autism Questionnaire-Parent Version (QoLA-P), autism behavior checklist and Clinical Global Impression scale were assessed of 162 patients with ASD. STATISTICAL ANALYSIS USED: Unpaired t- test, Mann–Whitney U test, Kruskal–Wallis test, and one-way ANOVA test were used for comparing groups. The parameters found to be statistically significant for QoLA-P in different analyses were included as the independent variable in the logistic regression analysis. The backward (variable elimination) model was selected as the model in the analysis. RESULTS: The causality has been established may be stated as the severity of autism, the presence of psychiatric disorder in the mother/father, attendance of the child at school, duration since the diagnosis of autism, and the child's medication use. CONCLUSIONS: Autism affects the QoL of caregivers. The intervention of treatment by considering the factors that affect the QoL positively or negatively may increase the QoL of caregivers. Medknow Publications & Media Pvt Ltd 2018 /pmc/articles/PMC6201674/ /pubmed/30405252 http://dx.doi.org/10.4103/psychiatry.IndianJPsychiatry_300_17 Text en Copyright: © 2018 Indian Journal of Psychiatry http://creativecommons.org/licenses/by-nc-sa/4.0 This is an open access journal, and articles are distributed under the terms of the Creative Commons Attribution-NonCommercial-ShareAlike 4.0 License, which allows others to remix, tweak, and build upon the work non-commercially, as long as appropriate credit is given and the new creations are licensed under the identical terms.
spellingShingle Original Article
Özgür, Börte Gürbüz
Aksu, Hatice
Eser, Erhan
Factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder
title Factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder
title_full Factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder
title_fullStr Factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder
title_full_unstemmed Factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder
title_short Factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder
title_sort factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6201674/
https://www.ncbi.nlm.nih.gov/pubmed/30405252
http://dx.doi.org/10.4103/psychiatry.IndianJPsychiatry_300_17
work_keys_str_mv AT ozgurbortegurbuz factorsaffectingqualityoflifeofcaregiversofchildrendiagnosedwithautismspectrumdisorder
AT aksuhatice factorsaffectingqualityoflifeofcaregiversofchildrendiagnosedwithautismspectrumdisorder
AT esererhan factorsaffectingqualityoflifeofcaregiversofchildrendiagnosedwithautismspectrumdisorder