The 10th Oxbridge varsity medical ethics debate-should we fear the rise of direct-to-consumer genetic testing?

In an increasingly data-driven age of medicine, do companies that offer genetic testing directly to patients represent an important part of personalising care, or a dangerous threat to privacy? Should we celebrate this new mechanism of patient involvement, or fear its implications? The Universities...

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Autores principales: Holland, Christian Michael Armstrong, Arbe-Barnes, Edward Harry, McGivern, Euan Joseph, Forgan, Ruairidh Mungo Connor
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2018
Materias:
Meeting Report
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6205791/
https://www.ncbi.nlm.nih.gov/pubmed/30371347
http://dx.doi.org/10.1186/s13010-018-0069-9
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author Holland, Christian Michael Armstrong
Arbe-Barnes, Edward Harry
McGivern, Euan Joseph
Forgan, Ruairidh Mungo Connor
author_facet Holland, Christian Michael Armstrong
Arbe-Barnes, Edward Harry
McGivern, Euan Joseph
Forgan, Ruairidh Mungo Connor
author_sort Holland, Christian Michael Armstrong
collection PubMed
description In an increasingly data-driven age of medicine, do companies that offer genetic testing directly to patients represent an important part of personalising care, or a dangerous threat to privacy? Should we celebrate this new mechanism of patient involvement, or fear its implications? The Universities of Oxford and Cambridge addressed these issues in the 10th annual Medical Ethics Varsity Debate, through the motion: “This House Regrets the Rise of Direct-to-Consumer Genetic Testing”. This article summarises and extends key arguments made in the debate, exploring the impacts of such genetic testing on both the individual patient and broader society, with special consideration as to whether companies can ever truly guarantee anonymity of genetic data.
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spelling pubmed-62057912018-10-31 The 10th Oxbridge varsity medical ethics debate-should we fear the rise of direct-to-consumer genetic testing? Holland, Christian Michael Armstrong Arbe-Barnes, Edward Harry McGivern, Euan Joseph Forgan, Ruairidh Mungo Connor Philos Ethics Humanit Med Meeting Report In an increasingly data-driven age of medicine, do companies that offer genetic testing directly to patients represent an important part of personalising care, or a dangerous threat to privacy? Should we celebrate this new mechanism of patient involvement, or fear its implications? The Universities of Oxford and Cambridge addressed these issues in the 10th annual Medical Ethics Varsity Debate, through the motion: “This House Regrets the Rise of Direct-to-Consumer Genetic Testing”. This article summarises and extends key arguments made in the debate, exploring the impacts of such genetic testing on both the individual patient and broader society, with special consideration as to whether companies can ever truly guarantee anonymity of genetic data. BioMed Central 2018-10-29 /pmc/articles/PMC6205791/ /pubmed/30371347 http://dx.doi.org/10.1186/s13010-018-0069-9 Text en © The Author(s). 2018 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Meeting Report
Holland, Christian Michael Armstrong
Arbe-Barnes, Edward Harry
McGivern, Euan Joseph
Forgan, Ruairidh Mungo Connor
The 10th Oxbridge varsity medical ethics debate-should we fear the rise of direct-to-consumer genetic testing?
title The 10th Oxbridge varsity medical ethics debate-should we fear the rise of direct-to-consumer genetic testing?
title_full The 10th Oxbridge varsity medical ethics debate-should we fear the rise of direct-to-consumer genetic testing?
title_fullStr The 10th Oxbridge varsity medical ethics debate-should we fear the rise of direct-to-consumer genetic testing?
title_full_unstemmed The 10th Oxbridge varsity medical ethics debate-should we fear the rise of direct-to-consumer genetic testing?
title_short The 10th Oxbridge varsity medical ethics debate-should we fear the rise of direct-to-consumer genetic testing?
title_sort 10th oxbridge varsity medical ethics debate-should we fear the rise of direct-to-consumer genetic testing?
topic Meeting Report
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6205791/
https://www.ncbi.nlm.nih.gov/pubmed/30371347
http://dx.doi.org/10.1186/s13010-018-0069-9
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