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Representative Claims in Healthcare: Identifying the Variety in Patient Representation
In many countries patient involvement is high on the healthcare policy agenda, which includes patient representation in collective decision-making. Patient organizations are generally considered to be important representatives of patients. Other actors also claim to represent patients in decision-ma...
Autores principales: | , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer Singapore
2018
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6209022/ https://www.ncbi.nlm.nih.gov/pubmed/29882180 http://dx.doi.org/10.1007/s11673-018-9861-x |
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author | van de Bovenkamp, Hester M. Vollaard, Hans |
author_facet | van de Bovenkamp, Hester M. Vollaard, Hans |
author_sort | van de Bovenkamp, Hester M. |
collection | PubMed |
description | In many countries patient involvement is high on the healthcare policy agenda, which includes patient representation in collective decision-making. Patient organizations are generally considered to be important representatives of patients. Other actors also claim to represent patients in decision-making, such as politicians, healthcare professionals, and client advisory councils. In this paper we take a broad view of patient representation, examining all the actors claiming to represent patients in the Dutch debate on the decentralization of care. We conclude that variety in forms of representation could help do justice to the variety of patient preferences. In addition we conclude that in order to ensure the democratic quality of patient representation, actors making representative claims have to reflect on how their claims relate to each other and how they can ensure authorization and accountability in the representative relationship with those they claim to represent. |
format | Online Article Text |
id | pubmed-6209022 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2018 |
publisher | Springer Singapore |
record_format | MEDLINE/PubMed |
spelling | pubmed-62090222018-11-13 Representative Claims in Healthcare: Identifying the Variety in Patient Representation van de Bovenkamp, Hester M. Vollaard, Hans J Bioeth Inq Symposium: Collective Representation in Healthcare Policy In many countries patient involvement is high on the healthcare policy agenda, which includes patient representation in collective decision-making. Patient organizations are generally considered to be important representatives of patients. Other actors also claim to represent patients in decision-making, such as politicians, healthcare professionals, and client advisory councils. In this paper we take a broad view of patient representation, examining all the actors claiming to represent patients in the Dutch debate on the decentralization of care. We conclude that variety in forms of representation could help do justice to the variety of patient preferences. In addition we conclude that in order to ensure the democratic quality of patient representation, actors making representative claims have to reflect on how their claims relate to each other and how they can ensure authorization and accountability in the representative relationship with those they claim to represent. Springer Singapore 2018-06-07 2018 /pmc/articles/PMC6209022/ /pubmed/29882180 http://dx.doi.org/10.1007/s11673-018-9861-x Text en © The Author(s) 2018 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. |
spellingShingle | Symposium: Collective Representation in Healthcare Policy van de Bovenkamp, Hester M. Vollaard, Hans Representative Claims in Healthcare: Identifying the Variety in Patient Representation |
title | Representative Claims in Healthcare: Identifying the Variety in Patient Representation |
title_full | Representative Claims in Healthcare: Identifying the Variety in Patient Representation |
title_fullStr | Representative Claims in Healthcare: Identifying the Variety in Patient Representation |
title_full_unstemmed | Representative Claims in Healthcare: Identifying the Variety in Patient Representation |
title_short | Representative Claims in Healthcare: Identifying the Variety in Patient Representation |
title_sort | representative claims in healthcare: identifying the variety in patient representation |
topic | Symposium: Collective Representation in Healthcare Policy |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6209022/ https://www.ncbi.nlm.nih.gov/pubmed/29882180 http://dx.doi.org/10.1007/s11673-018-9861-x |
work_keys_str_mv | AT vandebovenkamphesterm representativeclaimsinhealthcareidentifyingthevarietyinpatientrepresentation AT vollaardhans representativeclaimsinhealthcareidentifyingthevarietyinpatientrepresentation |