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“Life is Much More Difficult to Manage During Periods”: Autistic Experiences of Menstruation

Although menarche and menstruation are perceived to be overwhelmingly negative events for developmentally-disabled women, women’s health issues remain under-researched in autism. Here, we conducted a preliminary investigation of the experiences of post-menarcheal autistic (n = 123) and non-autistic...

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Detalles Bibliográficos
Autores principales: Steward, Robyn, Crane, Laura, Mairi Roy, Eilish, Remington, Anna, Pellicano, Elizabeth
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6223765/
https://www.ncbi.nlm.nih.gov/pubmed/29982893
http://dx.doi.org/10.1007/s10803-018-3664-0
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author Steward, Robyn
Crane, Laura
Mairi Roy, Eilish
Remington, Anna
Pellicano, Elizabeth
author_facet Steward, Robyn
Crane, Laura
Mairi Roy, Eilish
Remington, Anna
Pellicano, Elizabeth
author_sort Steward, Robyn
collection PubMed
description Although menarche and menstruation are perceived to be overwhelmingly negative events for developmentally-disabled women, women’s health issues remain under-researched in autism. Here, we conducted a preliminary investigation of the experiences of post-menarcheal autistic (n = 123) and non-autistic (n = 114) respondents to a brief online survey. Although autistic respondents reported many overlapping issues and experiences with non-autistic respondents, they also highlighted distinct—and sometimes-distressing—issues relating to menstruation, especially a cyclical amplification of autistic-related challenges, including sensory differences and difficulties with regulating emotion and behavior, which had a significant, negative impact on their lives. These initial findings call for systematic research on the potential causes, correlates and consequences of menstrual-related problems in autistic individuals—across the spectrum and the lifespan.
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spelling pubmed-62237652018-11-18 “Life is Much More Difficult to Manage During Periods”: Autistic Experiences of Menstruation Steward, Robyn Crane, Laura Mairi Roy, Eilish Remington, Anna Pellicano, Elizabeth J Autism Dev Disord Brief Communication Although menarche and menstruation are perceived to be overwhelmingly negative events for developmentally-disabled women, women’s health issues remain under-researched in autism. Here, we conducted a preliminary investigation of the experiences of post-menarcheal autistic (n = 123) and non-autistic (n = 114) respondents to a brief online survey. Although autistic respondents reported many overlapping issues and experiences with non-autistic respondents, they also highlighted distinct—and sometimes-distressing—issues relating to menstruation, especially a cyclical amplification of autistic-related challenges, including sensory differences and difficulties with regulating emotion and behavior, which had a significant, negative impact on their lives. These initial findings call for systematic research on the potential causes, correlates and consequences of menstrual-related problems in autistic individuals—across the spectrum and the lifespan. Springer US 2018-07-07 2018 /pmc/articles/PMC6223765/ /pubmed/29982893 http://dx.doi.org/10.1007/s10803-018-3664-0 Text en © The Author(s) 2018 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.
spellingShingle Brief Communication
Steward, Robyn
Crane, Laura
Mairi Roy, Eilish
Remington, Anna
Pellicano, Elizabeth
“Life is Much More Difficult to Manage During Periods”: Autistic Experiences of Menstruation
title “Life is Much More Difficult to Manage During Periods”: Autistic Experiences of Menstruation
title_full “Life is Much More Difficult to Manage During Periods”: Autistic Experiences of Menstruation
title_fullStr “Life is Much More Difficult to Manage During Periods”: Autistic Experiences of Menstruation
title_full_unstemmed “Life is Much More Difficult to Manage During Periods”: Autistic Experiences of Menstruation
title_short “Life is Much More Difficult to Manage During Periods”: Autistic Experiences of Menstruation
title_sort “life is much more difficult to manage during periods”: autistic experiences of menstruation
topic Brief Communication
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6223765/
https://www.ncbi.nlm.nih.gov/pubmed/29982893
http://dx.doi.org/10.1007/s10803-018-3664-0
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