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Digital Technology for Caregivers of People With Psychosis: Systematic Review

BACKGROUND: Psychotic disorders are severe mental health conditions that adversely affect the quality of life and life expectancy. Schizophrenia, the most common and severe form of psychosis affects 21 million people globally. Informal caregivers (families) are known to play an important role in fac...

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Autores principales: Onwumere, Juliana, Amaral, Filipa, Valmaggia, Lucia R
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6231782/
https://www.ncbi.nlm.nih.gov/pubmed/30185402
http://dx.doi.org/10.2196/mental.9857
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author Onwumere, Juliana
Amaral, Filipa
Valmaggia, Lucia R
author_facet Onwumere, Juliana
Amaral, Filipa
Valmaggia, Lucia R
author_sort Onwumere, Juliana
collection PubMed
description BACKGROUND: Psychotic disorders are severe mental health conditions that adversely affect the quality of life and life expectancy. Schizophrenia, the most common and severe form of psychosis affects 21 million people globally. Informal caregivers (families) are known to play an important role in facilitating patient recovery outcomes, although their own health and well-being could be adversely affected by the illness. The application of novel digital interventions in mental health care for patient groups is rapidly expanding; interestingly, however, far less is known about their role with family caregivers. OBJECTIVE: This study aimed to systematically identify the application of digital interventions that focus on informal caregivers of people with psychosis and describe their outcomes. METHODS: We completed a search for relevant papers in four electronic databases (EMBASE, MEDLINE, PsycINFO, and Web of Science). The search also included the Cochrane database and manual search of reference lists of relevant papers. The search was undertaken in accordance with Preferred Reporting Items for Systematic Reviews and Meta-Analyses reporting guidelines. RESULTS: The search identified 9 studies derived from 8 unique datasets. Most studies were assessments of feasibility and were undertaken in the United States. Interventions were predominately Web-based, with a focus on improving the caregivers’ knowledge and understanding about psychosis. CONCLUSIONS: This study offers preliminary support for the feasibility and acceptability of digital interventions for psychosis in informal caregiver populations. However, the findings underpin a clear need for greater development in the range of caregiver-focused digital approaches on offer and robust evaluation of their outcomes. The use of digital approaches with caregiver populations seemingly lags someway behind the significant developments observed in patient groups.
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spelling pubmed-62317822018-12-03 Digital Technology for Caregivers of People With Psychosis: Systematic Review Onwumere, Juliana Amaral, Filipa Valmaggia, Lucia R JMIR Ment Health Review BACKGROUND: Psychotic disorders are severe mental health conditions that adversely affect the quality of life and life expectancy. Schizophrenia, the most common and severe form of psychosis affects 21 million people globally. Informal caregivers (families) are known to play an important role in facilitating patient recovery outcomes, although their own health and well-being could be adversely affected by the illness. The application of novel digital interventions in mental health care for patient groups is rapidly expanding; interestingly, however, far less is known about their role with family caregivers. OBJECTIVE: This study aimed to systematically identify the application of digital interventions that focus on informal caregivers of people with psychosis and describe their outcomes. METHODS: We completed a search for relevant papers in four electronic databases (EMBASE, MEDLINE, PsycINFO, and Web of Science). The search also included the Cochrane database and manual search of reference lists of relevant papers. The search was undertaken in accordance with Preferred Reporting Items for Systematic Reviews and Meta-Analyses reporting guidelines. RESULTS: The search identified 9 studies derived from 8 unique datasets. Most studies were assessments of feasibility and were undertaken in the United States. Interventions were predominately Web-based, with a focus on improving the caregivers’ knowledge and understanding about psychosis. CONCLUSIONS: This study offers preliminary support for the feasibility and acceptability of digital interventions for psychosis in informal caregiver populations. However, the findings underpin a clear need for greater development in the range of caregiver-focused digital approaches on offer and robust evaluation of their outcomes. The use of digital approaches with caregiver populations seemingly lags someway behind the significant developments observed in patient groups. JMIR Publications 2018-09-05 /pmc/articles/PMC6231782/ /pubmed/30185402 http://dx.doi.org/10.2196/mental.9857 Text en ©Juliana Onwumere, Filipa Amaral, Lucia R Valmaggia. Originally published in JMIR Mental Health (http://mental.jmir.org), 05.09.2018. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Mental Health, is properly cited. The complete bibliographic information, a link to the original publication on http://mental.jmir.org/, as well as this copyright and license information must be included.
spellingShingle Review
Onwumere, Juliana
Amaral, Filipa
Valmaggia, Lucia R
Digital Technology for Caregivers of People With Psychosis: Systematic Review
title Digital Technology for Caregivers of People With Psychosis: Systematic Review
title_full Digital Technology for Caregivers of People With Psychosis: Systematic Review
title_fullStr Digital Technology for Caregivers of People With Psychosis: Systematic Review
title_full_unstemmed Digital Technology for Caregivers of People With Psychosis: Systematic Review
title_short Digital Technology for Caregivers of People With Psychosis: Systematic Review
title_sort digital technology for caregivers of people with psychosis: systematic review
topic Review
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6231782/
https://www.ncbi.nlm.nih.gov/pubmed/30185402
http://dx.doi.org/10.2196/mental.9857
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