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Impact of biobanks on research outcomes in rare diseases: a systematic review
BACKGROUND: Alleviating the burden of rare diseases requires research into new diagnostic and therapeutic strategies. We undertook a systematic review to identify and compare the impact of stand-alone registries, registries with biobanks, and rare disease biobanks on research outcomes in rare diseas...
Autores principales: | Garcia, Monique, Downs, Jenny, Russell, Alyce, Wang, Wei |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2018
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6233271/ https://www.ncbi.nlm.nih.gov/pubmed/30419920 http://dx.doi.org/10.1186/s13023-018-0942-z |
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