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Optimizing outcomes for ankylosing spondylitis and axial spondyloarthritis patients: a holistic approach to care

Axial SpA (axSpA) can affect diverse elements of an individual’s life. The areas affected can be much more wide-ranging than the historical medical model of SpA, causing increased disease activity (pain and stiffness) and disability (reduced range of movement and physical function). A more holistic...

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Detalles Bibliográficos
Autor principal: Packham, Jonathan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6238224/
https://www.ncbi.nlm.nih.gov/pubmed/30445484
http://dx.doi.org/10.1093/rheumatology/key200
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author Packham, Jonathan
author_facet Packham, Jonathan
author_sort Packham, Jonathan
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description Axial SpA (axSpA) can affect diverse elements of an individual’s life. The areas affected can be much more wide-ranging than the historical medical model of SpA, causing increased disease activity (pain and stiffness) and disability (reduced range of movement and physical function). A more holistic view of the individual results in the realization that many other areas of life can be adversely affected by axSpA, from the ability to work effectively and function socially, to effects on quality of life and the onset of worsening fatigue or mood disturbance. A good understanding of these areas outside the medical model allows for an improved understanding of the overall life impact of axSpA. This highlights the importance of understanding how to measure these elements of life using patient-reported outcome measures that can truly reflect an individual’s experience of axSpA. These measures can then provide a better insight into the risks and benefits of interventions and medications used to treat axSpA.
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spelling pubmed-62382242018-11-21 Optimizing outcomes for ankylosing spondylitis and axial spondyloarthritis patients: a holistic approach to care Packham, Jonathan Rheumatology (Oxford) Reviews Axial SpA (axSpA) can affect diverse elements of an individual’s life. The areas affected can be much more wide-ranging than the historical medical model of SpA, causing increased disease activity (pain and stiffness) and disability (reduced range of movement and physical function). A more holistic view of the individual results in the realization that many other areas of life can be adversely affected by axSpA, from the ability to work effectively and function socially, to effects on quality of life and the onset of worsening fatigue or mood disturbance. A good understanding of these areas outside the medical model allows for an improved understanding of the overall life impact of axSpA. This highlights the importance of understanding how to measure these elements of life using patient-reported outcome measures that can truly reflect an individual’s experience of axSpA. These measures can then provide a better insight into the risks and benefits of interventions and medications used to treat axSpA. Oxford University Press 2018-11 2018-11-16 /pmc/articles/PMC6238224/ /pubmed/30445484 http://dx.doi.org/10.1093/rheumatology/key200 Text en © The Author(s) 2018. Published by Oxford University Press on behalf of the British Society for Rheumatology. http://creativecommons.org/licenses/by-nc/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited. For commercial re-use, please contact journals.permissions@oup.com
spellingShingle Reviews
Packham, Jonathan
Optimizing outcomes for ankylosing spondylitis and axial spondyloarthritis patients: a holistic approach to care
title Optimizing outcomes for ankylosing spondylitis and axial spondyloarthritis patients: a holistic approach to care
title_full Optimizing outcomes for ankylosing spondylitis and axial spondyloarthritis patients: a holistic approach to care
title_fullStr Optimizing outcomes for ankylosing spondylitis and axial spondyloarthritis patients: a holistic approach to care
title_full_unstemmed Optimizing outcomes for ankylosing spondylitis and axial spondyloarthritis patients: a holistic approach to care
title_short Optimizing outcomes for ankylosing spondylitis and axial spondyloarthritis patients: a holistic approach to care
title_sort optimizing outcomes for ankylosing spondylitis and axial spondyloarthritis patients: a holistic approach to care
topic Reviews
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6238224/
https://www.ncbi.nlm.nih.gov/pubmed/30445484
http://dx.doi.org/10.1093/rheumatology/key200
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