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Optimizing outcomes for ankylosing spondylitis and axial spondyloarthritis patients: a holistic approach to care
Axial SpA (axSpA) can affect diverse elements of an individual’s life. The areas affected can be much more wide-ranging than the historical medical model of SpA, causing increased disease activity (pain and stiffness) and disability (reduced range of movement and physical function). A more holistic...
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Formato: | Online Artículo Texto |
Lenguaje: | English |
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Oxford University Press
2018
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Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6238224/ https://www.ncbi.nlm.nih.gov/pubmed/30445484 http://dx.doi.org/10.1093/rheumatology/key200 |
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author | Packham, Jonathan |
author_facet | Packham, Jonathan |
author_sort | Packham, Jonathan |
collection | PubMed |
description | Axial SpA (axSpA) can affect diverse elements of an individual’s life. The areas affected can be much more wide-ranging than the historical medical model of SpA, causing increased disease activity (pain and stiffness) and disability (reduced range of movement and physical function). A more holistic view of the individual results in the realization that many other areas of life can be adversely affected by axSpA, from the ability to work effectively and function socially, to effects on quality of life and the onset of worsening fatigue or mood disturbance. A good understanding of these areas outside the medical model allows for an improved understanding of the overall life impact of axSpA. This highlights the importance of understanding how to measure these elements of life using patient-reported outcome measures that can truly reflect an individual’s experience of axSpA. These measures can then provide a better insight into the risks and benefits of interventions and medications used to treat axSpA. |
format | Online Article Text |
id | pubmed-6238224 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2018 |
publisher | Oxford University Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-62382242018-11-21 Optimizing outcomes for ankylosing spondylitis and axial spondyloarthritis patients: a holistic approach to care Packham, Jonathan Rheumatology (Oxford) Reviews Axial SpA (axSpA) can affect diverse elements of an individual’s life. The areas affected can be much more wide-ranging than the historical medical model of SpA, causing increased disease activity (pain and stiffness) and disability (reduced range of movement and physical function). A more holistic view of the individual results in the realization that many other areas of life can be adversely affected by axSpA, from the ability to work effectively and function socially, to effects on quality of life and the onset of worsening fatigue or mood disturbance. A good understanding of these areas outside the medical model allows for an improved understanding of the overall life impact of axSpA. This highlights the importance of understanding how to measure these elements of life using patient-reported outcome measures that can truly reflect an individual’s experience of axSpA. These measures can then provide a better insight into the risks and benefits of interventions and medications used to treat axSpA. Oxford University Press 2018-11 2018-11-16 /pmc/articles/PMC6238224/ /pubmed/30445484 http://dx.doi.org/10.1093/rheumatology/key200 Text en © The Author(s) 2018. Published by Oxford University Press on behalf of the British Society for Rheumatology. http://creativecommons.org/licenses/by-nc/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited. For commercial re-use, please contact journals.permissions@oup.com |
spellingShingle | Reviews Packham, Jonathan Optimizing outcomes for ankylosing spondylitis and axial spondyloarthritis patients: a holistic approach to care |
title | Optimizing outcomes for ankylosing spondylitis and axial spondyloarthritis patients: a holistic approach to care |
title_full | Optimizing outcomes for ankylosing spondylitis and axial spondyloarthritis patients: a holistic approach to care |
title_fullStr | Optimizing outcomes for ankylosing spondylitis and axial spondyloarthritis patients: a holistic approach to care |
title_full_unstemmed | Optimizing outcomes for ankylosing spondylitis and axial spondyloarthritis patients: a holistic approach to care |
title_short | Optimizing outcomes for ankylosing spondylitis and axial spondyloarthritis patients: a holistic approach to care |
title_sort | optimizing outcomes for ankylosing spondylitis and axial spondyloarthritis patients: a holistic approach to care |
topic | Reviews |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6238224/ https://www.ncbi.nlm.nih.gov/pubmed/30445484 http://dx.doi.org/10.1093/rheumatology/key200 |
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