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Consumer health-related needs of pregnant women and their caregivers

OBJECTIVES: To build effective applications, technology designers must understand consumer health needs. Pregnancy is a common health condition, and expectant families have unanswered questions. This study examined consumer health-related needs in pregnant women and caregivers and determined the typ...

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Autores principales: Robinson, Jamie R, Anders, Shilo H, Novak, Laurie L, Simpson, Christopher L, Holroyd, Lauren E, Bennett, Kelly A, Jackson, Gretchen P
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6241505/
https://www.ncbi.nlm.nih.gov/pubmed/30474071
http://dx.doi.org/10.1093/jamiaopen/ooy018
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author Robinson, Jamie R
Anders, Shilo H
Novak, Laurie L
Simpson, Christopher L
Holroyd, Lauren E
Bennett, Kelly A
Jackson, Gretchen P
author_facet Robinson, Jamie R
Anders, Shilo H
Novak, Laurie L
Simpson, Christopher L
Holroyd, Lauren E
Bennett, Kelly A
Jackson, Gretchen P
author_sort Robinson, Jamie R
collection PubMed
description OBJECTIVES: To build effective applications, technology designers must understand consumer health needs. Pregnancy is a common health condition, and expectant families have unanswered questions. This study examined consumer health-related needs in pregnant women and caregivers and determined the types of needs that were not met. MATERIALS AND METHODS: We enrolled pregnant women <36 weeks’ gestational age and caregivers from advanced maternal–fetal and group prenatal care settings. Participant characteristics were collected through surveys, and health-related needs were elicited in semi-structured interviews. Researchers categorized needs by semantic type and whether they were met (ie, met, partially met, or unmet). Inter-rater reliability was measured by Cohen’s kappa. RESULTS: Seventy-one pregnant women and 29 caregivers participated and reported 1054 needs, 28% unmet, and 49% partially met. Need types were 66.2% informational, 15.9% logistical, 8.9% social, 8.6% medical, and 0.3% other. Inter-rater reliability was near perfect (κ=0.95, P < 0.001). DISCUSSION: Common topics of unmet needs were prognosis, life management, and need for emotional support. For pregnant women, these unmet needs focused around being healthy, childbirth, infant care, and being a good mother; caregivers’ needs involved caring for the mother, the natural course of pregnancy, and life after pregnancy. CONCLUSION: Pregnant women and caregivers have a rich set of health-related needs with many not fully met. Caregivers’ needs differed from those of pregnant women and may not be adequately addressed by resources designed for mothers. Many unmet needs involved stress and life management. Knowledge about consumer health needs can inform the design of better technologies for pregnancy.
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spelling pubmed-62415052018-11-23 Consumer health-related needs of pregnant women and their caregivers Robinson, Jamie R Anders, Shilo H Novak, Laurie L Simpson, Christopher L Holroyd, Lauren E Bennett, Kelly A Jackson, Gretchen P JAMIA Open Research and Applications OBJECTIVES: To build effective applications, technology designers must understand consumer health needs. Pregnancy is a common health condition, and expectant families have unanswered questions. This study examined consumer health-related needs in pregnant women and caregivers and determined the types of needs that were not met. MATERIALS AND METHODS: We enrolled pregnant women <36 weeks’ gestational age and caregivers from advanced maternal–fetal and group prenatal care settings. Participant characteristics were collected through surveys, and health-related needs were elicited in semi-structured interviews. Researchers categorized needs by semantic type and whether they were met (ie, met, partially met, or unmet). Inter-rater reliability was measured by Cohen’s kappa. RESULTS: Seventy-one pregnant women and 29 caregivers participated and reported 1054 needs, 28% unmet, and 49% partially met. Need types were 66.2% informational, 15.9% logistical, 8.9% social, 8.6% medical, and 0.3% other. Inter-rater reliability was near perfect (κ=0.95, P < 0.001). DISCUSSION: Common topics of unmet needs were prognosis, life management, and need for emotional support. For pregnant women, these unmet needs focused around being healthy, childbirth, infant care, and being a good mother; caregivers’ needs involved caring for the mother, the natural course of pregnancy, and life after pregnancy. CONCLUSION: Pregnant women and caregivers have a rich set of health-related needs with many not fully met. Caregivers’ needs differed from those of pregnant women and may not be adequately addressed by resources designed for mothers. Many unmet needs involved stress and life management. Knowledge about consumer health needs can inform the design of better technologies for pregnancy. Oxford University Press 2018-06-18 /pmc/articles/PMC6241505/ /pubmed/30474071 http://dx.doi.org/10.1093/jamiaopen/ooy018 Text en © The Author(s) 2018. Published by Oxford University Press on behalf of the American Medical Informatics Association. http://creativecommons.org/licenses/by-nc/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited. For commercial re-use, please contact journals.permissions@oup.com
spellingShingle Research and Applications
Robinson, Jamie R
Anders, Shilo H
Novak, Laurie L
Simpson, Christopher L
Holroyd, Lauren E
Bennett, Kelly A
Jackson, Gretchen P
Consumer health-related needs of pregnant women and their caregivers
title Consumer health-related needs of pregnant women and their caregivers
title_full Consumer health-related needs of pregnant women and their caregivers
title_fullStr Consumer health-related needs of pregnant women and their caregivers
title_full_unstemmed Consumer health-related needs of pregnant women and their caregivers
title_short Consumer health-related needs of pregnant women and their caregivers
title_sort consumer health-related needs of pregnant women and their caregivers
topic Research and Applications
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6241505/
https://www.ncbi.nlm.nih.gov/pubmed/30474071
http://dx.doi.org/10.1093/jamiaopen/ooy018
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