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Patient involvement in qualitative data analysis in a trial of a patient‐centred intervention: Reconciling lay knowledge and scientific method
BACKGROUND: We conducted a pilot study of an intervention to facilitate patients’ agenda setting in clinical consultations. The primary aim of the study was to test the feasibility of running the randomized controlled trial. A secondary objective was to assess the extent to which patient and public...
Autores principales: | , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2018
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6250869/ https://www.ncbi.nlm.nih.gov/pubmed/30073734 http://dx.doi.org/10.1111/hex.12814 |
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author | Frost, Julia Gibson, Andy Harris‐Golesworthy, Faith Harris, Jim Britten, Nicky |
author_facet | Frost, Julia Gibson, Andy Harris‐Golesworthy, Faith Harris, Jim Britten, Nicky |
author_sort | Frost, Julia |
collection | PubMed |
description | BACKGROUND: We conducted a pilot study of an intervention to facilitate patients’ agenda setting in clinical consultations. The primary aim of the study was to test the feasibility of running the randomized controlled trial. A secondary objective was to assess the extent to which patient and public involvement (PPI) could contribute to the process of qualitative data analysis (QDA). AIMS: To describe a novel approach to including patient partners in QDA; to illustrate the kinds of contribution that patient partners made to QDA in this context; and to propose a characterization of a process by which patient involvement can contribute to knowledge production. METHODS: Six patient and public representatives were supported to contribute to data analysis via a range of modalities. During a series of QDA workshops, experienced research staff role‐played consultations and interviews, and provided vignettes. Workshop data and PPI diaries were analysed using thematic discourse analysis. RESULTS: We characterized a process of thesis, antithesis and synthesis. This PPI group contributed to the rigour and validity of the study findings by challenging their own and the researchers’ assumptions, and by testing the emerging hypotheses. By training PPI representatives to undertake qualitative data analysis, we transformed our understanding of doctor–patient consultations. CONCLUSIONS: This research required changes to our usual research practices but was in keeping with the objective of establishing meaningful patient involvement for a future definitive trial. This work was informed by concepts of critical humility, and a process of knowledge production enabled via the construction of a knowledge space. |
format | Online Article Text |
id | pubmed-6250869 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2018 |
publisher | John Wiley and Sons Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-62508692018-12-01 Patient involvement in qualitative data analysis in a trial of a patient‐centred intervention: Reconciling lay knowledge and scientific method Frost, Julia Gibson, Andy Harris‐Golesworthy, Faith Harris, Jim Britten, Nicky Health Expect Original Research Papers BACKGROUND: We conducted a pilot study of an intervention to facilitate patients’ agenda setting in clinical consultations. The primary aim of the study was to test the feasibility of running the randomized controlled trial. A secondary objective was to assess the extent to which patient and public involvement (PPI) could contribute to the process of qualitative data analysis (QDA). AIMS: To describe a novel approach to including patient partners in QDA; to illustrate the kinds of contribution that patient partners made to QDA in this context; and to propose a characterization of a process by which patient involvement can contribute to knowledge production. METHODS: Six patient and public representatives were supported to contribute to data analysis via a range of modalities. During a series of QDA workshops, experienced research staff role‐played consultations and interviews, and provided vignettes. Workshop data and PPI diaries were analysed using thematic discourse analysis. RESULTS: We characterized a process of thesis, antithesis and synthesis. This PPI group contributed to the rigour and validity of the study findings by challenging their own and the researchers’ assumptions, and by testing the emerging hypotheses. By training PPI representatives to undertake qualitative data analysis, we transformed our understanding of doctor–patient consultations. CONCLUSIONS: This research required changes to our usual research practices but was in keeping with the objective of establishing meaningful patient involvement for a future definitive trial. This work was informed by concepts of critical humility, and a process of knowledge production enabled via the construction of a knowledge space. John Wiley and Sons Inc. 2018-08-02 2018-12 /pmc/articles/PMC6250869/ /pubmed/30073734 http://dx.doi.org/10.1111/hex.12814 Text en © 2018 The Authors Health Expectations published by John Wiley & Sons Ltd This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Original Research Papers Frost, Julia Gibson, Andy Harris‐Golesworthy, Faith Harris, Jim Britten, Nicky Patient involvement in qualitative data analysis in a trial of a patient‐centred intervention: Reconciling lay knowledge and scientific method |
title | Patient involvement in qualitative data analysis in a trial of a patient‐centred intervention: Reconciling lay knowledge and scientific method |
title_full | Patient involvement in qualitative data analysis in a trial of a patient‐centred intervention: Reconciling lay knowledge and scientific method |
title_fullStr | Patient involvement in qualitative data analysis in a trial of a patient‐centred intervention: Reconciling lay knowledge and scientific method |
title_full_unstemmed | Patient involvement in qualitative data analysis in a trial of a patient‐centred intervention: Reconciling lay knowledge and scientific method |
title_short | Patient involvement in qualitative data analysis in a trial of a patient‐centred intervention: Reconciling lay knowledge and scientific method |
title_sort | patient involvement in qualitative data analysis in a trial of a patient‐centred intervention: reconciling lay knowledge and scientific method |
topic | Original Research Papers |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6250869/ https://www.ncbi.nlm.nih.gov/pubmed/30073734 http://dx.doi.org/10.1111/hex.12814 |
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