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1907. Barriers at the Last Hurdle: Implementing Advance Care Planning for People Living with HIV
BACKGROUND: Advance care planning (ACP) is an increasingly relevant clinical practice as the HIV epidemic ages. In addition to a “graying” cohort of stable people living with HIV (PLHIV), late presentations predominate among newly-diagnosed older people in Singapore. Despite the availability of anti...
Autores principales: | , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Oxford University Press
2018
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6253736/ http://dx.doi.org/10.1093/ofid/ofy210.1563 |
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author | Salada, Brenda Mae Lee, Siew Fai Chen, Clarisse Molton, James S Archuleta, Sophia Michaels, Jessica |
author_facet | Salada, Brenda Mae Lee, Siew Fai Chen, Clarisse Molton, James S Archuleta, Sophia Michaels, Jessica |
author_sort | Salada, Brenda Mae |
collection | PubMed |
description | BACKGROUND: Advance care planning (ACP) is an increasingly relevant clinical practice as the HIV epidemic ages. In addition to a “graying” cohort of stable people living with HIV (PLHIV), late presentations predominate among newly-diagnosed older people in Singapore. Despite the availability of antiretroviral therapy (ART), prognosis remains guarded in these late presenters and PLHIV with poor adherence for whom ACP is more urgently needed. We sought to evaluate ACP implementation using a cascade-of-care model and determine barriers to its completion among PLHIV receiving care in an HIV specialty clinic. METHODS: Eligible PLHIV were identified during multidisciplinary meetings of the National University Hospital’s HIV care team from January 2016 to December 2017. Eligibility was based on any of the following: age ≥55; current CD4 <200; ART nonadherence; or comorbidities potentially contributing to reduced life expectancy. ACP was offered to eligible PLHIV by their primary HIV doctor. If accepted, trained ACP facilitators continued the process of communication between PLHIV, doctors and loved ones. The process was completed with documentation of an agreed plan for future medical decisions, incorporating patient’s personal beliefs and goals, and with a nominated healthcare spokesperson. RESULTS: Among 432 PLHIV screened, 127 (29.4%) were eligible for ACP. Of these, 70 (55.1%) were offered, 47 (37.0%) accepted, and 12 (9.4%) completed ACP. Majority (38, 80.9%) who accepted ACP were ≥55 years old. Most were male (43, 91.4%) and of Chinese ethnicity (72%). We found no significant differences between those who were offered, accepted and completed ACP. [Image: see text] Barriers were examined via root cause analysis. Social stigma surrounding death (cultural beliefs) and HIV (isolation, fear of disclosure, lack of a potential spokesperson) were the major patient-centered barriers to ACP. Time constraint was the main healthcare provider-centered factor. CONCLUSION: Fewer than 10% of eligible PLHIV completed ACP. Interventions to address barriers along the cascade are urgently needed to ensure that the increased life expectancy of PLHIV translates into increased opportunities for ACP. All healthcare providers should dedicate time, address stigma and correct misconceptions by incorporating ACP discussions into the routine care of PLHIV. DISCLOSURES: All authors: No reported disclosures. |
format | Online Article Text |
id | pubmed-6253736 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2018 |
publisher | Oxford University Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-62537362018-11-28 1907. Barriers at the Last Hurdle: Implementing Advance Care Planning for People Living with HIV Salada, Brenda Mae Lee, Siew Fai Chen, Clarisse Molton, James S Archuleta, Sophia Michaels, Jessica Open Forum Infect Dis Abstracts BACKGROUND: Advance care planning (ACP) is an increasingly relevant clinical practice as the HIV epidemic ages. In addition to a “graying” cohort of stable people living with HIV (PLHIV), late presentations predominate among newly-diagnosed older people in Singapore. Despite the availability of antiretroviral therapy (ART), prognosis remains guarded in these late presenters and PLHIV with poor adherence for whom ACP is more urgently needed. We sought to evaluate ACP implementation using a cascade-of-care model and determine barriers to its completion among PLHIV receiving care in an HIV specialty clinic. METHODS: Eligible PLHIV were identified during multidisciplinary meetings of the National University Hospital’s HIV care team from January 2016 to December 2017. Eligibility was based on any of the following: age ≥55; current CD4 <200; ART nonadherence; or comorbidities potentially contributing to reduced life expectancy. ACP was offered to eligible PLHIV by their primary HIV doctor. If accepted, trained ACP facilitators continued the process of communication between PLHIV, doctors and loved ones. The process was completed with documentation of an agreed plan for future medical decisions, incorporating patient’s personal beliefs and goals, and with a nominated healthcare spokesperson. RESULTS: Among 432 PLHIV screened, 127 (29.4%) were eligible for ACP. Of these, 70 (55.1%) were offered, 47 (37.0%) accepted, and 12 (9.4%) completed ACP. Majority (38, 80.9%) who accepted ACP were ≥55 years old. Most were male (43, 91.4%) and of Chinese ethnicity (72%). We found no significant differences between those who were offered, accepted and completed ACP. [Image: see text] Barriers were examined via root cause analysis. Social stigma surrounding death (cultural beliefs) and HIV (isolation, fear of disclosure, lack of a potential spokesperson) were the major patient-centered barriers to ACP. Time constraint was the main healthcare provider-centered factor. CONCLUSION: Fewer than 10% of eligible PLHIV completed ACP. Interventions to address barriers along the cascade are urgently needed to ensure that the increased life expectancy of PLHIV translates into increased opportunities for ACP. All healthcare providers should dedicate time, address stigma and correct misconceptions by incorporating ACP discussions into the routine care of PLHIV. DISCLOSURES: All authors: No reported disclosures. Oxford University Press 2018-11-26 /pmc/articles/PMC6253736/ http://dx.doi.org/10.1093/ofid/ofy210.1563 Text en © The Author(s) 2018. Published by Oxford University Press on behalf of Infectious Diseases Society of America. http://creativecommons.org/licenses/by-nc-nd/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs licence (http://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial reproduction and distribution of the work, in any medium, provided the original work is not altered or transformed in any way, and that the work is properly cited. For commercial re-use, please contact journals.permissions@oup.com |
spellingShingle | Abstracts Salada, Brenda Mae Lee, Siew Fai Chen, Clarisse Molton, James S Archuleta, Sophia Michaels, Jessica 1907. Barriers at the Last Hurdle: Implementing Advance Care Planning for People Living with HIV |
title | 1907. Barriers at the Last Hurdle: Implementing Advance Care Planning for People Living with HIV |
title_full | 1907. Barriers at the Last Hurdle: Implementing Advance Care Planning for People Living with HIV |
title_fullStr | 1907. Barriers at the Last Hurdle: Implementing Advance Care Planning for People Living with HIV |
title_full_unstemmed | 1907. Barriers at the Last Hurdle: Implementing Advance Care Planning for People Living with HIV |
title_short | 1907. Barriers at the Last Hurdle: Implementing Advance Care Planning for People Living with HIV |
title_sort | 1907. barriers at the last hurdle: implementing advance care planning for people living with hiv |
topic | Abstracts |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6253736/ http://dx.doi.org/10.1093/ofid/ofy210.1563 |
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