Cargando…

Strengthening ethical community engagement in contemporary Malawi

Although community engagement is increasingly promoted in global health research to improve ethical research practice, there is sometimes a disconnect between the broader moral ambitions for community engagement in the literature and guidelines on the one hand and its rather narrower practical appli...

Descripción completa

Detalles Bibliográficos
Autores principales: Nyirenda, Deborah, Gooding, Kate, Sambakunsi, Rodrick, Seyama, Linley, Mfutso-Bengo, Joseph, Manda Taylor, Lucinda, Gordon, Stephen B., Parker, Michael
Formato: Online Artículo Texto
Lenguaje:English
Publicado: F1000 Research Limited 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6259484/
https://www.ncbi.nlm.nih.gov/pubmed/30542663
http://dx.doi.org/10.12688/wellcomeopenres.14793.2
_version_ 1783374689798717440
author Nyirenda, Deborah
Gooding, Kate
Sambakunsi, Rodrick
Seyama, Linley
Mfutso-Bengo, Joseph
Manda Taylor, Lucinda
Gordon, Stephen B.
Parker, Michael
author_facet Nyirenda, Deborah
Gooding, Kate
Sambakunsi, Rodrick
Seyama, Linley
Mfutso-Bengo, Joseph
Manda Taylor, Lucinda
Gordon, Stephen B.
Parker, Michael
author_sort Nyirenda, Deborah
collection PubMed
description Although community engagement is increasingly promoted in global health research to improve ethical research practice, there is sometimes a disconnect between the broader moral ambitions for community engagement in the literature and guidelines on the one hand and its rather narrower practical application in health research on the other. In practice, less attention is paid to engaging communities for the ‘intrinsic’ value of showing respect and ensuring inclusive participation of community partners in research design. Rather, more attention is paid to the use of community engagement for ‘instrumental’ purposes to improve community understanding of research and ensure successful study implementation. Against this backdrop, we reviewed the literature and engaged various research stakeholders at a workshop to discuss ways of strengthening ethical engagement of communities and to develop context-relevant guidelines for community engagement in health research in Malawi.
format Online
Article
Text
id pubmed-6259484
institution National Center for Biotechnology Information
language English
publishDate 2019
publisher F1000 Research Limited
record_format MEDLINE/PubMed
spelling pubmed-62594842018-12-11 Strengthening ethical community engagement in contemporary Malawi Nyirenda, Deborah Gooding, Kate Sambakunsi, Rodrick Seyama, Linley Mfutso-Bengo, Joseph Manda Taylor, Lucinda Gordon, Stephen B. Parker, Michael Wellcome Open Res Open Letter Although community engagement is increasingly promoted in global health research to improve ethical research practice, there is sometimes a disconnect between the broader moral ambitions for community engagement in the literature and guidelines on the one hand and its rather narrower practical application in health research on the other. In practice, less attention is paid to engaging communities for the ‘intrinsic’ value of showing respect and ensuring inclusive participation of community partners in research design. Rather, more attention is paid to the use of community engagement for ‘instrumental’ purposes to improve community understanding of research and ensure successful study implementation. Against this backdrop, we reviewed the literature and engaged various research stakeholders at a workshop to discuss ways of strengthening ethical engagement of communities and to develop context-relevant guidelines for community engagement in health research in Malawi. F1000 Research Limited 2019-03-18 /pmc/articles/PMC6259484/ /pubmed/30542663 http://dx.doi.org/10.12688/wellcomeopenres.14793.2 Text en Copyright: © 2019 Nyirenda D et al. http://creativecommons.org/licenses/by/4.0/ This is an open access article distributed under the terms of the Creative Commons Attribution Licence, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Open Letter
Nyirenda, Deborah
Gooding, Kate
Sambakunsi, Rodrick
Seyama, Linley
Mfutso-Bengo, Joseph
Manda Taylor, Lucinda
Gordon, Stephen B.
Parker, Michael
Strengthening ethical community engagement in contemporary Malawi
title Strengthening ethical community engagement in contemporary Malawi
title_full Strengthening ethical community engagement in contemporary Malawi
title_fullStr Strengthening ethical community engagement in contemporary Malawi
title_full_unstemmed Strengthening ethical community engagement in contemporary Malawi
title_short Strengthening ethical community engagement in contemporary Malawi
title_sort strengthening ethical community engagement in contemporary malawi
topic Open Letter
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6259484/
https://www.ncbi.nlm.nih.gov/pubmed/30542663
http://dx.doi.org/10.12688/wellcomeopenres.14793.2
work_keys_str_mv AT nyirendadeborah strengtheningethicalcommunityengagementincontemporarymalawi
AT goodingkate strengtheningethicalcommunityengagementincontemporarymalawi
AT sambakunsirodrick strengtheningethicalcommunityengagementincontemporarymalawi
AT seyamalinley strengtheningethicalcommunityengagementincontemporarymalawi
AT mfutsobengojoseph strengtheningethicalcommunityengagementincontemporarymalawi
AT mandataylorlucinda strengtheningethicalcommunityengagementincontemporarymalawi
AT gordonstephenb strengtheningethicalcommunityengagementincontemporarymalawi
AT parkermichael strengtheningethicalcommunityengagementincontemporarymalawi