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Strengthening ethical community engagement in contemporary Malawi
Although community engagement is increasingly promoted in global health research to improve ethical research practice, there is sometimes a disconnect between the broader moral ambitions for community engagement in the literature and guidelines on the one hand and its rather narrower practical appli...
Autores principales: | , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
F1000 Research Limited
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6259484/ https://www.ncbi.nlm.nih.gov/pubmed/30542663 http://dx.doi.org/10.12688/wellcomeopenres.14793.2 |
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author | Nyirenda, Deborah Gooding, Kate Sambakunsi, Rodrick Seyama, Linley Mfutso-Bengo, Joseph Manda Taylor, Lucinda Gordon, Stephen B. Parker, Michael |
author_facet | Nyirenda, Deborah Gooding, Kate Sambakunsi, Rodrick Seyama, Linley Mfutso-Bengo, Joseph Manda Taylor, Lucinda Gordon, Stephen B. Parker, Michael |
author_sort | Nyirenda, Deborah |
collection | PubMed |
description | Although community engagement is increasingly promoted in global health research to improve ethical research practice, there is sometimes a disconnect between the broader moral ambitions for community engagement in the literature and guidelines on the one hand and its rather narrower practical application in health research on the other. In practice, less attention is paid to engaging communities for the ‘intrinsic’ value of showing respect and ensuring inclusive participation of community partners in research design. Rather, more attention is paid to the use of community engagement for ‘instrumental’ purposes to improve community understanding of research and ensure successful study implementation. Against this backdrop, we reviewed the literature and engaged various research stakeholders at a workshop to discuss ways of strengthening ethical engagement of communities and to develop context-relevant guidelines for community engagement in health research in Malawi. |
format | Online Article Text |
id | pubmed-6259484 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2019 |
publisher | F1000 Research Limited |
record_format | MEDLINE/PubMed |
spelling | pubmed-62594842018-12-11 Strengthening ethical community engagement in contemporary Malawi Nyirenda, Deborah Gooding, Kate Sambakunsi, Rodrick Seyama, Linley Mfutso-Bengo, Joseph Manda Taylor, Lucinda Gordon, Stephen B. Parker, Michael Wellcome Open Res Open Letter Although community engagement is increasingly promoted in global health research to improve ethical research practice, there is sometimes a disconnect between the broader moral ambitions for community engagement in the literature and guidelines on the one hand and its rather narrower practical application in health research on the other. In practice, less attention is paid to engaging communities for the ‘intrinsic’ value of showing respect and ensuring inclusive participation of community partners in research design. Rather, more attention is paid to the use of community engagement for ‘instrumental’ purposes to improve community understanding of research and ensure successful study implementation. Against this backdrop, we reviewed the literature and engaged various research stakeholders at a workshop to discuss ways of strengthening ethical engagement of communities and to develop context-relevant guidelines for community engagement in health research in Malawi. F1000 Research Limited 2019-03-18 /pmc/articles/PMC6259484/ /pubmed/30542663 http://dx.doi.org/10.12688/wellcomeopenres.14793.2 Text en Copyright: © 2019 Nyirenda D et al. http://creativecommons.org/licenses/by/4.0/ This is an open access article distributed under the terms of the Creative Commons Attribution Licence, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Open Letter Nyirenda, Deborah Gooding, Kate Sambakunsi, Rodrick Seyama, Linley Mfutso-Bengo, Joseph Manda Taylor, Lucinda Gordon, Stephen B. Parker, Michael Strengthening ethical community engagement in contemporary Malawi |
title | Strengthening ethical community engagement in contemporary Malawi |
title_full | Strengthening ethical community engagement in contemporary Malawi |
title_fullStr | Strengthening ethical community engagement in contemporary Malawi |
title_full_unstemmed | Strengthening ethical community engagement in contemporary Malawi |
title_short | Strengthening ethical community engagement in contemporary Malawi |
title_sort | strengthening ethical community engagement in contemporary malawi |
topic | Open Letter |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6259484/ https://www.ncbi.nlm.nih.gov/pubmed/30542663 http://dx.doi.org/10.12688/wellcomeopenres.14793.2 |
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