Patient and observer reported outcome measures to evaluate health-related quality of life in inherited metabolic diseases: a scoping review

BACKGROUND: Health-related Quality of Life (HrQoL) is a multidimensional measure, which has gained clinical and social relevance. Implementation of a patient-centred approach to both clinical research and care settings, has increased the recognition of patient and/or observer reported outcome measur...

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Detalles Bibliográficos
Autores principales: Pascoal, Carlota, Brasil, Sandra, Francisco, Rita, Marques-da-Silva, Dorinda, Rafalko, Agnes, Jaeken, Jaak, Videira, Paula A., Barros, Luísa, dos Reis Ferreira, Vanessa
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2018
Materias:
Review
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6263554/
https://www.ncbi.nlm.nih.gov/pubmed/30486833
http://dx.doi.org/10.1186/s13023-018-0953-9

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6263554/
https://www.ncbi.nlm.nih.gov/pubmed/30486833
http://dx.doi.org/10.1186/s13023-018-0953-9

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