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Patient and observer reported outcome measures to evaluate health-related quality of life in inherited metabolic diseases: a scoping review
BACKGROUND: Health-related Quality of Life (HrQoL) is a multidimensional measure, which has gained clinical and social relevance. Implementation of a patient-centred approach to both clinical research and care settings, has increased the recognition of patient and/or observer reported outcome measur...
| Autores principales: | , , , , , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2018
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6263554/ https://www.ncbi.nlm.nih.gov/pubmed/30486833 http://dx.doi.org/10.1186/s13023-018-0953-9 |