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Patient-reported experience measure in sickle cell disease

OBJECTIVES: To develop patient-reported experience measure surveys for patients with sickle cell disease (SCD) to understand their healthcare and lived experience in the UK and for their use in future to inform healthcare service development. DESIGN: Picker methodology was used as follows: (1) quali...

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Detalles Bibliográficos
Autores principales: Chakravorty, Subarna, Tallett, Amy, Witwicki, Cara, Hay, Harriet, Mkandawire, Catherine, Ogundipe, Avanelle, Ojeer, Patrick, Whitaker, Antonia, Thompson, Jessica, Sizmur, Stephen, Sathyamoorthy, Ganesh, Warner, John O
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6287562/
https://www.ncbi.nlm.nih.gov/pubmed/30077973
http://dx.doi.org/10.1136/archdischild-2018-314955