Cargando…

Patient-reported experience measure in sickle cell disease

OBJECTIVES: To develop patient-reported experience measure surveys for patients with sickle cell disease (SCD) to understand their healthcare and lived experience in the UK and for their use in future to inform healthcare service development. DESIGN: Picker methodology was used as follows: (1) quali...

Descripción completa

Detalles Bibliográficos
Autores principales:	Chakravorty, Subarna, Tallett, Amy, Witwicki, Cara, Hay, Harriet, Mkandawire, Catherine, Ogundipe, Avanelle, Ojeer, Patrick, Whitaker, Antonia, Thompson, Jessica, Sizmur, Stephen, Sathyamoorthy, Ganesh, Warner, John O
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BMJ Publishing Group 2018
Materias:	Global Child Health
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6287562/ https://www.ncbi.nlm.nih.gov/pubmed/30077973 http://dx.doi.org/10.1136/archdischild-2018-314955

Ejemplares similares

Sickle cell disease: a neglected chronic disease of increasing global health importance
por: Chakravorty, Subarna, et al.
Publicado: (2015)

Experiences and supportive care needs of UK patients with pancreatic cancer: a cross-sectional questionnaire survey
por: Watson, Eila K, et al.
Publicado: (2019)

Using Twitter Comments to Understand People’s Experiences of UK Health Care During the COVID-19 Pandemic: Thematic and Sentiment Analysis
por: Ainley, Esther, et al.
Publicado: (2021)

Prediction modelling of inpatient neonatal mortality in high-mortality settings
por: Aluvaala, Jalemba, et al.
Publicado: (2021)

Evaluation of a contactless neonatal physiological monitor in Nairobi, Kenya
por: Wang, Dee, et al.
Publicado: (2022)

High prevalence of infection and low incidence of disease in child contacts of patients with drug-resistant tuberculosis: a prospective cohort study
por: Huerga, Helena, et al.
Publicado: (2019)

Neurodevelopment in normocephalic children with and without prenatal Zika virus exposure
por: Blackmon, Karen, et al.
Publicado: (2022)

COVID-19 in Malawi: lessons in pandemic preparedness from a tertiary children’s hospital
por: Chaziya, Jessica, et al.
Publicado: (2021)

Aetiology and management of malnutrition in HIV-positive children
por: Rose, Anna M, et al.
Publicado: (2014)

Water, sanitation, hygiene and enteric infections in children
por: Brown, Joe, et al.
Publicado: (2013)

Neonatal–perinatal medicine in a transitional period in China
por: Sun, Bo, et al.
Publicado: (2013)

Child development assessment tools in low-income and middle-income countries: how can we use them more appropriately?
por: Sabanathan, Saraswathy, et al.
Publicado: (2015)

Cause-specific neonatal mortality: analysis of 3772 neonatal deaths in Nepal, Bangladesh, Malawi and India
por: Fottrell, Edward, et al.
Publicado: (2015)

Large-scale data reporting of paediatric morbidity and mortality in developing countries: it can be done
por: Duke, Trevor, et al.
Publicado: (2016)

Enhancing emergency care in low-income countries using mobile technology-based training tools
por: Edgcombe, Hilary, et al.
Publicado: (2016)

Challenges in reducing group B Streptococcus disease in African settings
por: Nishihara, Yo, et al.
Publicado: (2017)

Holistic care of complicated tuberculosis in healthcare settings with limited resources
por: Duke, Trevor, et al.
Publicado: (2017)

Integrating primary eye care into global child health policies
por: Malik, Aeesha Nusrat Jehan, et al.
Publicado: (2018)

Neonatal resuscitation using a laryngeal mask airway: a randomised trial in Uganda
por: Pejovic, Nicolas J, et al.
Publicado: (2018)

Evaluating the process and outcomes of child death review in the Solomon Islands
por: Sandakabatu, Mathew, et al.
Publicado: (2018)

Simplified management protocol for term neonates after prolonged rupture of membranes in a setting with high rates of neonatal sepsis and mortality: a quality improvement study
por: Olita’a, Diana, et al.
Publicado: (2019)

Approaching quality improvement at scale: a learning health system approach in Kenya
por: Irimu, Grace, et al.
Publicado: (2018)

Growth of preterm infants at the time of global obesity
por: Villar, José, et al.
Publicado: (2019)

Developing guidelines in low-income and middle-income countries: lessons from Kenya
por: English, Mike, et al.
Publicado: (2017)

Paediatrics in Russia: past, present and future
por: Baranov, Alexander, et al.
Publicado: (2017)

How young children learn independent asthma self-management: a qualitative study in Malaysia
por: Ramdzan, Siti Nurkamilla, et al.
Publicado: (2020)

Perinatal encephalopathy, the syndrome of intracranial hypertension and associated diagnostic labels in the Commonwealth of Independent States: a systematic review
por: Mustafayev, Revan, et al.
Publicado: (2020)

The paediatrician workforce and its role in addressing neonatal, child and adolescent healthcare in Kenya
por: English, Mike, et al.
Publicado: (2020)

Review of Integrated Management of Childhood Illness (IMCI) in 16 countries in Central Asia and Europe: implications for primary healthcare in the era of universal health coverage
por: Carai, Susanne, et al.
Publicado: (2019)

Screen of traditional soup broths with reported antipyretic activity towards the discovery of potential antimalarials
por: Straschil, Ursula, et al.
Publicado: (2019)

Neurodevelopment at 2 years corrected age among Vietnamese preterm infants
por: Do, Chuong Huu Thieu, et al.
Publicado: (2020)

Improved care and survival in severe malnutrition through eLearning
por: Choi, Sunhea, et al.
Publicado: (2020)

Towards understanding global patterns of antimicrobial use and resistance in neonatal sepsis: insights from the NeoAMR network
por: Li, Grace, et al.
Publicado: (2020)

Rojiroti microfinance and child nutrition: a cluster randomised trial
por: Ojha, Shalini, et al.
Publicado: (2020)

Anthropometric measures that identify premature and low birth weight newborns in Ethiopia: a cross-sectional study with community follow-up
por: Gidi, Netsanet Workneh, et al.
Publicado: (2020)

Solar-powered oxygen, quality improvement and child pneumonia deaths: a large-scale effectiveness study
por: Duke, Trevor, et al.
Publicado: (2021)

New screening approach to detecting congenital syphilis in China: a retrospective cohort study
por: Hu, Fang, et al.
Publicado: (2021)

Stressors and support system among parents of neonates hospitalised with systemic infections: qualitative study in South India
por: Murthy, Shruti, et al.
Publicado: (2021)

First do no harm: practitioners’ ability to ‘diagnose’ system weaknesses and improve safety is a critical initial step in improving care quality
por: English, Mike, et al.
Publicado: (2021)

How to do no harm: empowering local leaders to make care safer in low-resource settings
por: Vincent, Charles A, et al.
Publicado: (2021)

Cannot write session to /tmp/vufind_sessions/sess_jm7aqumvh3kofov6pftp7tmb7f