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User Perspectives of a Web-Based Data-Sharing Platform (Open Humans) on Ethical Oversight in Participant-Led Research: Protocol for a Quantitative Study
BACKGROUND: Advances in medicine rely to a great extent on people’s willingness to share their data with researchers. With increasingly widespread use of digital technologies, several Web-based communities have emerged aiming to enable their users to share large amounts of data, some of which can po...
Autores principales: | Fadda, Marta, Jobin, Anna, Blasimme, Alessandro, Greshake Tzovaras, Bastian, Price Ball, Mad, Vayena, Effy |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
JMIR Publications
2018
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6291678/ https://www.ncbi.nlm.nih.gov/pubmed/30487120 http://dx.doi.org/10.2196/10939 |
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