Cargando…

Children’s and Parents’ Conceptualization of Quality of Life in Children With Brain Tumors: A Meta-Ethnographic Exploration

The concept of quality of life (QoL) is used in consultations to plan the care and treatment of children and young people (CYP) with brain tumors (BTs). The way in which CYP, their parents, and their health care professionals (HCP) each understand the term has not been adequately investigated. This...

Descripción completa

Detalles Bibliográficos
Autores principales:	Beecham, Emma, Langner, Richard, Hargrave, Darren, Bluebond-Langner, Myra
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	SAGE Publications 2018
Materias:	Research Articles
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6293456/ https://www.ncbi.nlm.nih.gov/pubmed/30043679 http://dx.doi.org/10.1177/1049732318786484

Ejemplares similares

‘I have to live with the decisions I make’: laying a foundation for decision making for children with life-limiting conditions and life-threatening illnesses
por: Bluebond-Langner, Myra, et al.
Publicado: (2017)

Preferred place of death for children and young people with life-limiting and life-threatening conditions: A systematic review of the literature and recommendations for future inquiry and policy
por: Bluebond-Langner, Myra, et al.
Publicado: (2013)

Research barriers in children and young people with life-limiting conditions: a survey
por: Peake, Jordana Natalie, et al.
Publicado: (2022)

Inviting parents to take part in paediatric palliative care research: A mixed-methods examination of selection bias
por: Crocker, Joanna C, et al.
Publicado: (2015)

Keeping all options open: Parents’ approaches to advance care planning
por: Beecham, Emma, et al.
Publicado: (2016)

Insights into the perception that research ethics committees are a barrier to research with seriously ill children: A study of committee minutes and correspondence with researchers studying seriously ill children
por: Butler, Ashleigh E, et al.
Publicado: (2019)

Home or hospital as the place of end-of-life care and death: A grounded theory study of parents’ decision-making
por: Papadatou, Danai, et al.
Publicado: (2020)

Current understanding of decision-making in adolescents with cancer: A narrative systematic review
por: Day, Emma, et al.
Publicado: (2016)

Experiences of children with trisomy 18 referred to pediatric palliative care services on two continents
por: Mullin, Jonathan, et al.
Publicado: (2019)

Use of buccal morphine in the management of pain in children with life-limiting conditions: Results of a laboratory study
por: McCulloch, Renée, et al.
Publicado: (2017)

Palliative care for children with complex cardiac conditions: survey results
por: Vemuri, Sidharth, et al.
Publicado: (2022)

Longitudinal investigation of prognostic communication: Feasibility and acceptability of studying serial disease reevaluation conversations in children with high‐risk cancer
por: Kaye, Erica C., et al.
Publicado: (2019)

Documentation of breakthrough pain in narrative clinical records of children with life-limiting conditions: Feasibility of a retrospective review
por: Oostendorp, Linda JM, et al.
Publicado: (2018)

The under reporting of recruitment strategies in research with children with life-threatening illnesses: A systematic review
por: Hudson, Briony F, et al.
Publicado: (2016)

Palliative care for children and young people with stage 5 chronic kidney disease
por: Craig, Finella, et al.
Publicado: (2021)

The impact of prenatal counselling on mothers of surviving children with hypoplastic left heart syndrome: A qualitative interview study
por: Bertaud, Sophie, et al.
Publicado: (2020)

Advances and Challenges in European Paediatric Palliative Care
por: Fraser, Lorna K, et al.
Publicado: (2020)

Withdrawal of ventilatory support outside the intensive care unit: guidance for practice
por: Laddie, Joanna, et al.
Publicado: (2014)

Design and Administration of Patient-Centred Outcome Measures: The Perspectives of Children and Young People with Life-Limiting or Life-Threatening Conditions and Their Family Members
por: Coombes, Lucy, et al.
Publicado: (2023)

Achieving child-centred care for children and young people with life-limiting and life-threatening conditions—a qualitative interview study
por: Coombes, Lucy, et al.
Publicado: (2022)

Spiritual, religious, and existential concerns of children and young people with life-limiting and life-threatening conditions: A qualitative interview study
por: Scott, Hannah May, et al.
Publicado: (2023)

Ethnographic Exploration of Empowerment to Improve Elderly Residents’ Quality of Life
por: Tabatabaei, Seyed Zia, et al.
Publicado: (2017)

A call for increased paediatric palliative care research: Identifying barriers
por: Beecham, Emma, et al.
Publicado: (2016)

Critique of an Ethnographic Study of Exploration of Empowerment to Improve Elderly Residents' Quality of Life
por: Salisu, Waliu J., et al.
Publicado: (2019)

Perception of parents about second hand smoke on the health of their children: an ethnographic study
por: Ribeiro, Fabiane Alves de Carvalho, et al.
Publicado: (2015)

Exploring children’s exposure to voice assistants and their ontological conceptualizations of life and technology
por: Festerling, Janik, et al.
Publicado: (2022)

Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children’s research involvement group and expert item generation
por: Coombes, Lucy, et al.
Publicado: (2023)

LGG-46. Survival Of The Fittest? A Prognostic Evaluation of Paediatric Low-Grade Glioma (PLGG) Survivor Functional Outcomes
por: Green, Katherine, et al.
Publicado: (2022)

Understanding Parental Role in Children’s Participation in Decision Making during Hospitalisation: An Ethnographic Study in Malaysia
por: Siew Pien, Lee, et al.
Publicado: (2023)

Attending to child agency in paediatric palliative care consultations: Adults’ use of tag questions directed to the child
por: Ekberg, Katie, et al.
Publicado: (2022)

Use of a Split Pedicled Gracilis Muscle Flap in Robotic-assisted Vaginectomy and Urethral Lengthening for Phalloplasty
por: Cohen, Oriana, et al.
Publicado: (2019)

Quality of life in children: the use of parent reports
por: Koot, Hans M
Publicado: (2020)

Abstract: Robotically Harvested Peritoneal Flaps As a Well-Vascularized Adjunct to Penile Inversion Vaginoplasty
por: Jacoby, Adam, et al.
Publicado: (2018)

QS7: Does Genital Self-image Correspond With Sexual Health Before And After Vaginoplasty
por: Isabella Kloer, Carmen, et al.
Publicado: (2021)

Abstract: A Survey Study of Surgeons’ Experience with Regret and/or Reversal of Gender-Confirmation Surgeries
por: Danker, Sara, et al.
Publicado: (2018)

Plastic and Reconstructive Surgeons' Knowledge and Comfort of Contralateral Prophylactic Mastectomy: A Survey of the American Society of Plastic Surgeons
por: Lopez, Christopher D., et al.
Publicado: (2019)

Quality of life among parents of children with heart disease
por: Arafa, Mostafa A, et al.
Publicado: (2008)

Quality of life among parents of children with phenylketonuria (PKU)
por: Fidika, Astrid, et al.
Publicado: (2013)

Quality of life of parents and siblings of children with cochlear implants
por: Umat, Cila, et al.
Publicado: (2019)

EVALUATION OF QUALITY OF LIFE OF PARENTS AND CAREGIVERS OF ASTHMATIC CHILDREN
por: Roncada, Cristian, et al.
Publicado: (2018)

Cannot write session to /tmp/vufind_sessions/sess_7go46e2d21hojh6qj3d4ntiljp