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A review of quality of life themes in Duchenne muscular dystrophy for patients and carers
Duchenne Muscular Dystrophy (DMD) is a severe, life-limiting and incurable condition. However, studies estimating quality of life and those measuring actual quality of life in people living with DMD vary considerably. This discrepancy indicates potential difficulties with assessing quality of life u...
Autores principales: | Uttley, Lesley, Carlton, Jill, Woods, Helen Buckley, Brazier, John |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2018
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6299926/ https://www.ncbi.nlm.nih.gov/pubmed/30567556 http://dx.doi.org/10.1186/s12955-018-1062-0 |
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