Illustration of patient-reported outcome challenges and solutions in rare diseases: a systematic review in Cushing’s syndrome

Rare diseases are often not fully understood and efforts put in investigating it from patient perspective are usually met with challenges. We performed a systematic literature review (SLR) for the last 20 years in Cushing’s Syndrome (CS) to illustrate Patient-Reported Outcome (PRO) challenges, and s...

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Detalles Bibliográficos
Autores principales: Knoble, Naomi, Nayroles, Gabrielle, Cheng, Cherry, Arnould, Benoit
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2018
Materias:
Review
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6299940/
https://www.ncbi.nlm.nih.gov/pubmed/30567582
http://dx.doi.org/10.1186/s13023-018-0958-4

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