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Specialist palliative care, psychology, interstitial lung disease (ILD) multidisciplinary team meeting: a novel model to address palliative care needs

INTRODUCTION: Patients with progressive idiopathic fibrotic interstitial lung disease (ILD), such as those with idiopathic pulmonary fibrosis (IPF), can have an aggressive disease course, with a median survival of only 3–5 years from diagnosis. The palliative care needs of these patients are often u...

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Autores principales: Barratt, Shaney L, Morales, Michelle, Speirs, Toby, Al Jboor, Khaled, Lamb, Heather, Mulholland, Sarah, Edwards, Adrienne, Gunary, Rachel, Meek, Patricia, Jordan, Nikki, Sharp, Charles, Kendall, Clare, Adamali, Huzaifa I
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6307575/
https://www.ncbi.nlm.nih.gov/pubmed/30622718
http://dx.doi.org/10.1136/bmjresp-2018-000360
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author Barratt, Shaney L
Morales, Michelle
Speirs, Toby
Al Jboor, Khaled
Lamb, Heather
Mulholland, Sarah
Edwards, Adrienne
Gunary, Rachel
Meek, Patricia
Jordan, Nikki
Sharp, Charles
Kendall, Clare
Adamali, Huzaifa I
author_facet Barratt, Shaney L
Morales, Michelle
Speirs, Toby
Al Jboor, Khaled
Lamb, Heather
Mulholland, Sarah
Edwards, Adrienne
Gunary, Rachel
Meek, Patricia
Jordan, Nikki
Sharp, Charles
Kendall, Clare
Adamali, Huzaifa I
author_sort Barratt, Shaney L
collection PubMed
description INTRODUCTION: Patients with progressive idiopathic fibrotic interstitial lung disease (ILD), such as those with idiopathic pulmonary fibrosis (IPF), can have an aggressive disease course, with a median survival of only 3–5 years from diagnosis. The palliative care needs of these patients are often unmet. There are calls for new models of care, whereby the patient’s usual respiratory clinician remains central to the integration of palliative care principles and practices into their patient’s management, but the optimal model of service delivery has yet to be determined. METHODS: We developed a novel, collaborative, multidisciplinary team (MDT) meeting between our palliative care, psychology and ILD teams with the principal aim of integrating specialist care to ensure the needs of persons with ILD, and their caregivers were identified and met by referral to the appropriate service. The objective of this study was to assess the effectiveness of this novel MDT meeting on the assessment of a patient’s palliative care needs. RESULTS: Significant increases in advance care planning discussions were observed, in conjunction with increased referrals to community courses and teams, following introduction of this novel MDT. CONCLUSIONS: Our results suggest that our collaborative MDT is an effective platform to address patients’ unmet palliative care needs. Further work is required to explore the effect of our model on achieving the preferred place of death and reductions in unplanned hospital admissions.
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spelling pubmed-63075752019-01-08 Specialist palliative care, psychology, interstitial lung disease (ILD) multidisciplinary team meeting: a novel model to address palliative care needs Barratt, Shaney L Morales, Michelle Speirs, Toby Al Jboor, Khaled Lamb, Heather Mulholland, Sarah Edwards, Adrienne Gunary, Rachel Meek, Patricia Jordan, Nikki Sharp, Charles Kendall, Clare Adamali, Huzaifa I BMJ Open Respir Res Interstitial Lung Disease INTRODUCTION: Patients with progressive idiopathic fibrotic interstitial lung disease (ILD), such as those with idiopathic pulmonary fibrosis (IPF), can have an aggressive disease course, with a median survival of only 3–5 years from diagnosis. The palliative care needs of these patients are often unmet. There are calls for new models of care, whereby the patient’s usual respiratory clinician remains central to the integration of palliative care principles and practices into their patient’s management, but the optimal model of service delivery has yet to be determined. METHODS: We developed a novel, collaborative, multidisciplinary team (MDT) meeting between our palliative care, psychology and ILD teams with the principal aim of integrating specialist care to ensure the needs of persons with ILD, and their caregivers were identified and met by referral to the appropriate service. The objective of this study was to assess the effectiveness of this novel MDT meeting on the assessment of a patient’s palliative care needs. RESULTS: Significant increases in advance care planning discussions were observed, in conjunction with increased referrals to community courses and teams, following introduction of this novel MDT. CONCLUSIONS: Our results suggest that our collaborative MDT is an effective platform to address patients’ unmet palliative care needs. Further work is required to explore the effect of our model on achieving the preferred place of death and reductions in unplanned hospital admissions. BMJ Publishing Group 2018-12-19 /pmc/articles/PMC6307575/ /pubmed/30622718 http://dx.doi.org/10.1136/bmjresp-2018-000360 Text en © Author(s) (or their employer(s)) 2018. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0
spellingShingle Interstitial Lung Disease
Barratt, Shaney L
Morales, Michelle
Speirs, Toby
Al Jboor, Khaled
Lamb, Heather
Mulholland, Sarah
Edwards, Adrienne
Gunary, Rachel
Meek, Patricia
Jordan, Nikki
Sharp, Charles
Kendall, Clare
Adamali, Huzaifa I
Specialist palliative care, psychology, interstitial lung disease (ILD) multidisciplinary team meeting: a novel model to address palliative care needs
title Specialist palliative care, psychology, interstitial lung disease (ILD) multidisciplinary team meeting: a novel model to address palliative care needs
title_full Specialist palliative care, psychology, interstitial lung disease (ILD) multidisciplinary team meeting: a novel model to address palliative care needs
title_fullStr Specialist palliative care, psychology, interstitial lung disease (ILD) multidisciplinary team meeting: a novel model to address palliative care needs
title_full_unstemmed Specialist palliative care, psychology, interstitial lung disease (ILD) multidisciplinary team meeting: a novel model to address palliative care needs
title_short Specialist palliative care, psychology, interstitial lung disease (ILD) multidisciplinary team meeting: a novel model to address palliative care needs
title_sort specialist palliative care, psychology, interstitial lung disease (ild) multidisciplinary team meeting: a novel model to address palliative care needs
topic Interstitial Lung Disease
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6307575/
https://www.ncbi.nlm.nih.gov/pubmed/30622718
http://dx.doi.org/10.1136/bmjresp-2018-000360
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