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Identifying Information Needs for Hirschsprung Disease Through Caregiver Involvement via Social Media: A Prioritization Study and Literature Review

BACKGROUND: Patient and public involvement in health research is important to produce relevant and impactful results. OBJECTIVE: This paper aimed to prioritize and summarize Hirschsprung disease (HD)–related information needs among caregivers of children with HD and pediatric surgeons through partne...

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Detalles Bibliográficos
Autores principales: Wittmeier, Kristy DM, Hobbs-Murison, Kendall, Holland, Cindy, Crawford, Elizabeth, Loewen, Hal, Morris, Melanie, Lum Min, Suyin, Abou-Setta, Ahmed, Keijzer, Richard
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6320415/
https://www.ncbi.nlm.nih.gov/pubmed/30578208
http://dx.doi.org/10.2196/jmir.9701