Cargando…

Involving patients and the public in medical and health care research studies: An exploratory survey on participant recruiting and representativeness from the perspective of study authors

Research on patient and public involvement so far concentrates on defining involvement, describing its methods, and analyzing involvement practices in various individual research disciplines. There is little empirical data on the process of and aims for selecting (lay) PPI participants, and to what...

Descripción completa

Detalles Bibliográficos
Autores principales:	Lander, Jonas, Langhof, Holger, Dierks, Marie-Luise
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Public Library of Science 2019
Materias:	Research Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6322864/ https://www.ncbi.nlm.nih.gov/pubmed/30615619 http://dx.doi.org/10.1371/journal.pone.0204187

Ejemplares similares

Input analysis for two public consultations on the EU Clinical Trials Regulation
por: Langhof, Holger, et al.
Publicado: (2016)

Correction: Lander et al. Health Literacy Development among People with Chronic Diseases: Advancing the State of the Art and Learning from International Practices. Int. J. Environ. Res. Public Health 2022, 19, 7315
por: Lander, Jonas, et al.
Publicado: (2023)

How Do Publicly Available Allergy-Specific Web-Based Training Programs Conform to the Established Criteria for the Reporting, Methods, and Content of Evidence-Based (Digital) Health Information and Education: Thematic Content Evaluation
por: Lander, Jonas, et al.
Publicado: (2019)

Parental COVID‐19–related health information practises, sources, evaluations and needs: A qualitative interview study
por: Altawil, Hala, et al.
Publicado: (2022)

Health Literacy Development among People with Chronic Diseases: Advancing the State of the Art and Learning from International Practices
por: Lander, Jonas, et al.
Publicado: (2022)

Perspectives on Recruitment and Representativeness in Forensic Psychiatric Research
por: Pedersen, Sven H., et al.
Publicado: (2021)

Implementation of data access and use procedures in clinical data warehouses. A systematic review of literature and publicly available policies
por: Pavlenko, Elena, et al.
Publicado: (2020)

Empirical studies on how ethical recommendations are translated into practice: a cross-section study on scope and study objectives
por: Schwietering, Johannes, et al.
Publicado: (2023)

Awareness, Information-Seeking Behavior, and Information Preferences About Early Childhood Allergy Prevention Among Different Parent Groups: Protocol for a Mixed Methods Study
por: Lander, Jonas, et al.
Publicado: (2021)

Correction: Awareness, Information-Seeking Behavior, and Information Preferences About Early Childhood Allergy Prevention Among Different Parent Groups: Protocol for a Mixed Methods Study
por: Lander, Jonas, et al.
Publicado: (2022)

Surrogate consent for critical care research: exploratory study on public perception and influences on recruitment
por: Lim, Daphne AFN, et al.
Publicado: (2013)

Intentional and actional components of engaged participation in public health research studies: qualitative synthesis of a recruitment and retention process into the theory-informed INTACT-RS framework
por: Lander, Jonas, et al.
Publicado: (2023)

How do health professionals translate evidence on early childhood allergy prevention into health literacy-responsive practice? A protocol for a mixed-method study on the views of German health professionals
por: Curbach, Janina, et al.
Publicado: (2021)

Perspectives on artificial intelligence in healthcare from a Patient and Public Involvement Panel in Japan: an exploratory study
por: Katirai, Amelia, et al.
Publicado: (2023)

Defying Unjust Authority: An Exploratory Study
por: Bocchiaro, Piero, et al.
Publicado: (2010)

The Challenge of Identifying Representative Samples in Research Involving Minority Participants
por: Pilonieta, Giovanna, et al.
Publicado: (2021)

Ethics Literacy and “Ethics University”: Two Intertwined Models for Public Involvement and Empowerment in Bioethics
por: Strech, Daniel, et al.
Publicado: (2016)

Researchers’ perspectives on pediatric obesity research participant recruitment
por: Parikh, Yasha, et al.
Publicado: (2016)

Using Information Technology and Social Networking for Recruitment of Research Participants: Experience From an Exploratory Study of Pediatric Klinefelter Syndrome
por: Close, Sharron, et al.
Publicado: (2013)

Use of Rideshare Services to Increase Participant Recruitment and Retention in Research: Participant Perspectives
por: Leavens, Eleanor Ladd Schneider, et al.
Publicado: (2019)

Advertising patient and public involvement in trials as a way of improving participant recruitment: development of an intervention and its evaluation
por: Hughes-Morley, Adwoa, et al.
Publicado: (2015)

Representativeness of autistic samples in studies recruiting through social media
por: Rødgaard, Eya‐Mist, et al.
Publicado: (2022)

Why do – or don’t – patients with urinary tract infection participate in a clinical trial? A qualitative study in German family medicine
por: Bleidorn, Jutta, et al.
Publicado: (2015)

How do parents access, appraise, and apply health information on early childhood allergy prevention? A focus group and interview study
por: Lander, Jonas, et al.
Publicado: (2023)

Performance, Cost-Effectiveness, and Representativeness of Facebook Recruitment to Suicide Prevention Research: Online Survey Study
por: Lee, Sylvia, et al.
Publicado: (2020)

Initiating Change of People With Criminal Justice Involvement Through Participation in a Drama Project: An Exploratory Study
por: Mundt, Adrian P., et al.
Publicado: (2019)

Contextual attributes associated with public participation in environmental impact assessments in Thailand: Perspectives obtained from authorities and academics
por: Kantamaturapoj, Kanang, et al.
Publicado: (2023)

Online Recruitment: Feasibility, Cost, and Representativeness in a Study of Postpartum Women
por: Leach, Liana S, et al.
Publicado: (2017)

Predictors of Participation Restriction in Midlife Caregivers: An Exploratory Study
por: Klinedinst, Tara, et al.
Publicado: (2021)

UK research funding bodies’ views towards public participation in health-related research decisions: an exploratory study
por: van Bekkum, Jennifer E, et al.
Publicado: (2014)

Representativeness of Participants in a Lifestyle Intervention Study in Obese Pregnant Women - the Difference between Study Participants and Non-Participants
por: Gesche, Joanna, et al.
Publicado: (2014)

Corrigendum: Initiating Change of People With Criminal Justice Involvement Through Participation in a Drama Project: An Exploratory Study
por: Mundt, Adrian P., et al.
Publicado: (2020)

The impact of advertising patient and public involvement on trial recruitment: embedded cluster randomised recruitment trial
por: Hughes-Morley, Adwoa, et al.
Publicado: (2016)

Author misrepresentation of institutional affiliations: protocol for an exploratory case study
por: Bachelet, Vivienne C, et al.
Publicado: (2019)

Participation in paediatric cancer studies: timing and approach to recruitment
por: Heiden, Tamika L, et al.
Publicado: (2013)

THE IMPACT OF DEMENTIA STIGMA IN RECRUITING PARTICIPANTS INTO RESEARCH STUDIES
por: Rose, Karen, et al.
Publicado: (2019)

Recruiting Eligible and Interested Study Participants With Cognitive Impairment
por: Mattos, Meghan, et al.
Publicado: (2021)

Recruitment of participants with pancreatic cancer to a mixed media study for optimal recruitment in an Australasian survey of pancreatic enzyme replacement
por: Landers, Amanda, et al.
Publicado: (2023)

Recruiting Participants in Vulnerable Situations: A Qualitative Evaluation of the Recruitment Process in the EFFICHRONIC Study
por: Serrano-Gallardo, Pilar, et al.
Publicado: (2022)

Changing Author Guidelines to Include Patient and Public Involvement
por: Kennedy, Ann Blair
Publicado: (2019)

Cannot write session to /tmp/vufind_sessions/sess_ajgluu76ilmhivsmvjugjb9ejc