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A Web-Based Platform for People With Memory Problems and Their Caregivers (CAREGIVERSPRO-MMD): Mixed-Methods Evaluation of Usability

BACKGROUND: The increasing number of people with dementia (PwD) drives research exploring Web-based support interventions to provide effective care for larger populations. In this concept, a Web-based platform (CAREGIVERSPRO-MMD, 620911) was designed to (1) improve the quality of life for PwD, (2) r...

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Autores principales: Zafeiridi, Paraskevi, Paulson, Kevin, Dunn, Rosie, Wolverson, Emma, White, Caroline, Thorpe, Jonathan Adrian, Antomarini, Marco, Cesaroni, Francesca, Scocchera, Francesca, Landrin-Dutot, Isabelle, Malherbe, Laëtitia, Lingiah, Hendi, Bérard, Marie, Gironès, Xavier, Quintana, Maria, Cortés, Ulises, Barrué, Cristian, Cortés, Atia, Paliokas, Ioannis, Votis, Konstantinos, Tzovaras, Dimitrios
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6334709/
https://www.ncbi.nlm.nih.gov/pubmed/30684403
http://dx.doi.org/10.2196/formative.9083
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author Zafeiridi, Paraskevi
Paulson, Kevin
Dunn, Rosie
Wolverson, Emma
White, Caroline
Thorpe, Jonathan Adrian
Antomarini, Marco
Cesaroni, Francesca
Scocchera, Francesca
Landrin-Dutot, Isabelle
Malherbe, Laëtitia
Lingiah, Hendi
Bérard, Marie
Gironès, Xavier
Quintana, Maria
Cortés, Ulises
Barrué, Cristian
Cortés, Atia
Paliokas, Ioannis
Votis, Konstantinos
Tzovaras, Dimitrios
author_facet Zafeiridi, Paraskevi
Paulson, Kevin
Dunn, Rosie
Wolverson, Emma
White, Caroline
Thorpe, Jonathan Adrian
Antomarini, Marco
Cesaroni, Francesca
Scocchera, Francesca
Landrin-Dutot, Isabelle
Malherbe, Laëtitia
Lingiah, Hendi
Bérard, Marie
Gironès, Xavier
Quintana, Maria
Cortés, Ulises
Barrué, Cristian
Cortés, Atia
Paliokas, Ioannis
Votis, Konstantinos
Tzovaras, Dimitrios
author_sort Zafeiridi, Paraskevi
collection PubMed
description BACKGROUND: The increasing number of people with dementia (PwD) drives research exploring Web-based support interventions to provide effective care for larger populations. In this concept, a Web-based platform (CAREGIVERSPRO-MMD, 620911) was designed to (1) improve the quality of life for PwD, (2) reduce caregiver burden, (3) reduce the financial costs for care, and (4) reduce administration time for health and social care professionals. OBJECTIVE: The objective of this study was to evaluate the usability and usefulness of CAREGIVERSPRO-MMD platform for PwD or mild cognitive impairment (MCI), informal caregivers, and health and social care professionals with respect to a wider strategy followed by the project to enhance the user-centered approach. A secondary aim of the study was to collect recommendations to improve the platform before the future pilot study. METHODS: A mixed methods design was employed for recruiting PwD or MCI (N=24), informal caregivers (N=24), and professionals (N=10). Participants were asked to rate their satisfaction, the perceived usefulness, and ease of use of each function of the platform. Qualitative questions about the improvement of the platform were asked when participants provided low scores for a function. Testing occurred at baseline and 1 week after participants used the platform. The dropout rate from baseline to the follow-up was approximately 10% (6/58). RESULTS: After 1 week of platform use, the system was useful for 90% (20.75/23) of the caregivers and for 89% (5.36/6) of the professionals. When users responded to more than 1 question per platform function, the mean of satisfied users per function was calculated. These user groups also provided positive evaluations for the ease of use (caregivers: 82%, 18.75/23; professionals: 97%, 5.82/6) and their satisfaction with the platform (caregivers: 79%, 18.08/23; professionals: 73%, 4.36/6). Ratings from PwD were lower than the other groups for usefulness (57%, 13/23), ease of use (41%, 9.4/23), and overall satisfaction (47%, 11/23) with the platform (P<.05). Qualitative comments related to both improvements for functionality and the platform interface. CONCLUSIONS: Although caregivers and professionals were overall satisfied with the platform, further adaptations were recommended by PwD. This reiterates the importance of the involvement of end users in the development of Web-based interventions. Recommendations from users in this paper apply for the interface and functionality of a wider range of Web-based support interventions.
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spelling pubmed-63347092019-01-23 A Web-Based Platform for People With Memory Problems and Their Caregivers (CAREGIVERSPRO-MMD): Mixed-Methods Evaluation of Usability Zafeiridi, Paraskevi Paulson, Kevin Dunn, Rosie Wolverson, Emma White, Caroline Thorpe, Jonathan Adrian Antomarini, Marco Cesaroni, Francesca Scocchera, Francesca Landrin-Dutot, Isabelle Malherbe, Laëtitia Lingiah, Hendi Bérard, Marie Gironès, Xavier Quintana, Maria Cortés, Ulises Barrué, Cristian Cortés, Atia Paliokas, Ioannis Votis, Konstantinos Tzovaras, Dimitrios JMIR Form Res Original Paper BACKGROUND: The increasing number of people with dementia (PwD) drives research exploring Web-based support interventions to provide effective care for larger populations. In this concept, a Web-based platform (CAREGIVERSPRO-MMD, 620911) was designed to (1) improve the quality of life for PwD, (2) reduce caregiver burden, (3) reduce the financial costs for care, and (4) reduce administration time for health and social care professionals. OBJECTIVE: The objective of this study was to evaluate the usability and usefulness of CAREGIVERSPRO-MMD platform for PwD or mild cognitive impairment (MCI), informal caregivers, and health and social care professionals with respect to a wider strategy followed by the project to enhance the user-centered approach. A secondary aim of the study was to collect recommendations to improve the platform before the future pilot study. METHODS: A mixed methods design was employed for recruiting PwD or MCI (N=24), informal caregivers (N=24), and professionals (N=10). Participants were asked to rate their satisfaction, the perceived usefulness, and ease of use of each function of the platform. Qualitative questions about the improvement of the platform were asked when participants provided low scores for a function. Testing occurred at baseline and 1 week after participants used the platform. The dropout rate from baseline to the follow-up was approximately 10% (6/58). RESULTS: After 1 week of platform use, the system was useful for 90% (20.75/23) of the caregivers and for 89% (5.36/6) of the professionals. When users responded to more than 1 question per platform function, the mean of satisfied users per function was calculated. These user groups also provided positive evaluations for the ease of use (caregivers: 82%, 18.75/23; professionals: 97%, 5.82/6) and their satisfaction with the platform (caregivers: 79%, 18.08/23; professionals: 73%, 4.36/6). Ratings from PwD were lower than the other groups for usefulness (57%, 13/23), ease of use (41%, 9.4/23), and overall satisfaction (47%, 11/23) with the platform (P<.05). Qualitative comments related to both improvements for functionality and the platform interface. CONCLUSIONS: Although caregivers and professionals were overall satisfied with the platform, further adaptations were recommended by PwD. This reiterates the importance of the involvement of end users in the development of Web-based interventions. Recommendations from users in this paper apply for the interface and functionality of a wider range of Web-based support interventions. JMIR Publications 2018-03-12 /pmc/articles/PMC6334709/ /pubmed/30684403 http://dx.doi.org/10.2196/formative.9083 Text en ©Paraskevi Zafeiridi, Kevin Paulson, Rosie Dunn, Emma Wolverson, Caroline White, Jonathan Adrian Thorpe, Marco Antomarini, Francesca Cesaroni, Francesca Scocchera, Isabelle Landrin-Dutot, Laëtitia Malherbe, Hendi Lingiah, Marie Bérard, Xavier Gironès, Maria Quintana, Ulises Cortés, Cristian Barrué, Atia Cortés, Ioannis Paliokas, Konstantinos Votis, Dimitrios Tzovaras. Originally published in JMIR Formative Research (http://formative.jmir.org), 12.03.2018. https://creativecommons.org/licenses/by/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Formative Research, is properly cited. The complete bibliographic information, a link to the original publication on http://formative.jmir.org, as well as this copyright and license information must be included.
spellingShingle Original Paper
Zafeiridi, Paraskevi
Paulson, Kevin
Dunn, Rosie
Wolverson, Emma
White, Caroline
Thorpe, Jonathan Adrian
Antomarini, Marco
Cesaroni, Francesca
Scocchera, Francesca
Landrin-Dutot, Isabelle
Malherbe, Laëtitia
Lingiah, Hendi
Bérard, Marie
Gironès, Xavier
Quintana, Maria
Cortés, Ulises
Barrué, Cristian
Cortés, Atia
Paliokas, Ioannis
Votis, Konstantinos
Tzovaras, Dimitrios
A Web-Based Platform for People With Memory Problems and Their Caregivers (CAREGIVERSPRO-MMD): Mixed-Methods Evaluation of Usability
title A Web-Based Platform for People With Memory Problems and Their Caregivers (CAREGIVERSPRO-MMD): Mixed-Methods Evaluation of Usability
title_full A Web-Based Platform for People With Memory Problems and Their Caregivers (CAREGIVERSPRO-MMD): Mixed-Methods Evaluation of Usability
title_fullStr A Web-Based Platform for People With Memory Problems and Their Caregivers (CAREGIVERSPRO-MMD): Mixed-Methods Evaluation of Usability
title_full_unstemmed A Web-Based Platform for People With Memory Problems and Their Caregivers (CAREGIVERSPRO-MMD): Mixed-Methods Evaluation of Usability
title_short A Web-Based Platform for People With Memory Problems and Their Caregivers (CAREGIVERSPRO-MMD): Mixed-Methods Evaluation of Usability
title_sort web-based platform for people with memory problems and their caregivers (caregiverspro-mmd): mixed-methods evaluation of usability
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6334709/
https://www.ncbi.nlm.nih.gov/pubmed/30684403
http://dx.doi.org/10.2196/formative.9083
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