A Conceptual Model of Angelman Syndrome and Review of Relevant Clinical Outcomes Assessments (COAs)

BACKGROUND: Angelman syndrome (AS) is a rare, neurological genetic disorder for which no clinical outcomes assessments (COAs) or conceptual models (CM) have been developed. OBJECTIVE: This study aimed to identify symptoms and impacts relevant and important in this patient population and develop a co...

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Detalles Bibliográficos
Autores principales: Grieco, Joseph C., Romero, Beverly, Flood, Emuella, Cabo, Raquel, Visootsak, Jeannie
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2018
Materias:
Original Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6335381/
https://www.ncbi.nlm.nih.gov/pubmed/29987743
http://dx.doi.org/10.1007/s40271-018-0323-7

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