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The current landscape of European registries for rare endocrine conditions
OBJECTIVE: To identify cross-border international registries for rare endocrine conditions that are led from Europe and to understand the extent of engagement with these registries within a network of reference centres (RCs) for rare endocrine conditions. METHODS: Database search of international re...
Autores principales: | , , , , , , , , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Bioscientifica Ltd
2018
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6347278/ https://www.ncbi.nlm.nih.gov/pubmed/30407922 http://dx.doi.org/10.1530/EJE-18-0861 |