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“Keeping it on your radar”—assessing the barriers and facilitators to a timely diagnosis of type 1 diabetes in childhood: A qualitative study from the early detection of type 1 diabetes in youth study

AIMS: The aim of this study was to explore from the perspectives of key stakeholders involved in the pathway to diagnosis, the barriers and facilitators to a timely diagnosis of type 1 diabetes in childhood. METHODS: Qualitative interviews and free‐text analyses were undertaken in 21 parents with a...

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Autores principales: Townson, Julia, Gallagher, Dunla, Cowley, Laura, Channon, Susan, Robling, Michael, Williams, David, Hughes, Clare, Murphy, Simon, Lowes, Lesley, Gregory, John W.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6373827/
https://www.ncbi.nlm.nih.gov/pubmed/30815545
http://dx.doi.org/10.1002/edm2.8
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author Townson, Julia
Gallagher, Dunla
Cowley, Laura
Channon, Susan
Robling, Michael
Williams, David
Hughes, Clare
Murphy, Simon
Lowes, Lesley
Gregory, John W.
author_facet Townson, Julia
Gallagher, Dunla
Cowley, Laura
Channon, Susan
Robling, Michael
Williams, David
Hughes, Clare
Murphy, Simon
Lowes, Lesley
Gregory, John W.
author_sort Townson, Julia
collection PubMed
description AIMS: The aim of this study was to explore from the perspectives of key stakeholders involved in the pathway to diagnosis, the barriers and facilitators to a timely diagnosis of type 1 diabetes in childhood. METHODS: Qualitative interviews and free‐text analyses were undertaken in 21 parents with a child diagnosed with type 1 diabetes, 60 parents without a child diagnosed with type 1 diabetes, 9 primary healthcare professionals, 9 teachers and 3 community diabetes liaison nurses. Data were analysed thematically and 30% double coded. RESULTS: Two key themes were identified, namely the importance of widespread awareness and knowledge and seeking healthcare professional help. Parents with a child diagnosed with type 1 diabetes described seeking opinions from a number of individuals prior to seeking health professional help. Healthcare professionals recognized the rarity of the condition and the need for it to be kept on their “radar”, to ensure they considered it when examining an unwell child. The process of obtaining a primary healthcare appointment was identified as potentially playing a crucial role in the diagnostic process. However, most parents with a child diagnosed with type 1 diabetes described receiving an appointment on the day they sought it. CONCLUSIONS: Knowledge and awareness of type 1 diabetes in childhood remain limited in the general population and misconceptions persist relating to how children present with this serious condition. An effective community‐based intervention to raise awareness amongst key stakeholders is required to ensure children receive a timely diagnosis once symptomatic.
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spelling pubmed-63738272019-02-27 “Keeping it on your radar”—assessing the barriers and facilitators to a timely diagnosis of type 1 diabetes in childhood: A qualitative study from the early detection of type 1 diabetes in youth study Townson, Julia Gallagher, Dunla Cowley, Laura Channon, Susan Robling, Michael Williams, David Hughes, Clare Murphy, Simon Lowes, Lesley Gregory, John W. Endocrinol Diabetes Metab Original Articles AIMS: The aim of this study was to explore from the perspectives of key stakeholders involved in the pathway to diagnosis, the barriers and facilitators to a timely diagnosis of type 1 diabetes in childhood. METHODS: Qualitative interviews and free‐text analyses were undertaken in 21 parents with a child diagnosed with type 1 diabetes, 60 parents without a child diagnosed with type 1 diabetes, 9 primary healthcare professionals, 9 teachers and 3 community diabetes liaison nurses. Data were analysed thematically and 30% double coded. RESULTS: Two key themes were identified, namely the importance of widespread awareness and knowledge and seeking healthcare professional help. Parents with a child diagnosed with type 1 diabetes described seeking opinions from a number of individuals prior to seeking health professional help. Healthcare professionals recognized the rarity of the condition and the need for it to be kept on their “radar”, to ensure they considered it when examining an unwell child. The process of obtaining a primary healthcare appointment was identified as potentially playing a crucial role in the diagnostic process. However, most parents with a child diagnosed with type 1 diabetes described receiving an appointment on the day they sought it. CONCLUSIONS: Knowledge and awareness of type 1 diabetes in childhood remain limited in the general population and misconceptions persist relating to how children present with this serious condition. An effective community‐based intervention to raise awareness amongst key stakeholders is required to ensure children receive a timely diagnosis once symptomatic. John Wiley and Sons Inc. 2017-12-18 /pmc/articles/PMC6373827/ /pubmed/30815545 http://dx.doi.org/10.1002/edm2.8 Text en © 2017 The Authors. Endocrinology, Diabetes & Metabolism published by John Wiley & Sons Ltd. This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.
spellingShingle Original Articles
Townson, Julia
Gallagher, Dunla
Cowley, Laura
Channon, Susan
Robling, Michael
Williams, David
Hughes, Clare
Murphy, Simon
Lowes, Lesley
Gregory, John W.
“Keeping it on your radar”—assessing the barriers and facilitators to a timely diagnosis of type 1 diabetes in childhood: A qualitative study from the early detection of type 1 diabetes in youth study
title “Keeping it on your radar”—assessing the barriers and facilitators to a timely diagnosis of type 1 diabetes in childhood: A qualitative study from the early detection of type 1 diabetes in youth study
title_full “Keeping it on your radar”—assessing the barriers and facilitators to a timely diagnosis of type 1 diabetes in childhood: A qualitative study from the early detection of type 1 diabetes in youth study
title_fullStr “Keeping it on your radar”—assessing the barriers and facilitators to a timely diagnosis of type 1 diabetes in childhood: A qualitative study from the early detection of type 1 diabetes in youth study
title_full_unstemmed “Keeping it on your radar”—assessing the barriers and facilitators to a timely diagnosis of type 1 diabetes in childhood: A qualitative study from the early detection of type 1 diabetes in youth study
title_short “Keeping it on your radar”—assessing the barriers and facilitators to a timely diagnosis of type 1 diabetes in childhood: A qualitative study from the early detection of type 1 diabetes in youth study
title_sort “keeping it on your radar”—assessing the barriers and facilitators to a timely diagnosis of type 1 diabetes in childhood: a qualitative study from the early detection of type 1 diabetes in youth study
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6373827/
https://www.ncbi.nlm.nih.gov/pubmed/30815545
http://dx.doi.org/10.1002/edm2.8
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