Cargando…

Charity financial support to motor neuron disease (MND) patients in Greater London: the impact of patients’ socioeconomic status—a cross-sectional study

OBJECTIVE: There is an immense socioeconomic burden for both the patients with motor neuron disease (MND) and their families. The aim of this study is to evaluate the extent to which the provision offered by the Motor Neurone Disease Association is distributed among patients with MND living in the e...

Descripción completa

Detalles Bibliográficos
Autores principales: Gkiouleka, Anna, Manning, Alison, Smith, Dianna, Malaspina, Andrea, Gallo, Valentina
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6377508/
https://www.ncbi.nlm.nih.gov/pubmed/30760512
http://dx.doi.org/10.1136/bmjopen-2018-022462
_version_ 1783395749515493376
author Gkiouleka, Anna
Manning, Alison
Smith, Dianna
Malaspina, Andrea
Gallo, Valentina
author_facet Gkiouleka, Anna
Manning, Alison
Smith, Dianna
Malaspina, Andrea
Gallo, Valentina
author_sort Gkiouleka, Anna
collection PubMed
description OBJECTIVE: There is an immense socioeconomic burden for both the patients with motor neuron disease (MND) and their families. The aim of this study is to evaluate the extent to which the provision offered by the Motor Neurone Disease Association is distributed among patients with MND living in the ethnically and socially diverse area of Greater London, according to the patients’ socioeconomic situation and needs. SETTING: Greater London, where age and sex-adjusted prevalence rates of MND in 2016 were calculated. PARTICIPANTS: Prevalent MND cases in Greater London, using anonymised data extracted from the Association’s database. EXPOSURE: Demographic and socioeconomic characteristics PRIMARY AND SECONDARY OUTCOME MEASURES: Receiving a Motor Neurone Disease Association grant, and the amount of money received. RESULTS: 396 individuals with amyotrophic lateral sclerosis were detected, the age-specific and sex-specific prevalence of MND was 4.02 per 100 000 inhabitants, higher among men (5.13 per 100 000) than women (3.01 per 100 000). Men were statistically significantly 40% less likely to receive a grant compared with women; among grant recipients, the younger the age of the participant, the higher the size of the grant received. The Index of Multiple Deprivation was not associated with either receiving a grant nor the amount of money received, among recipients. CONCLUSION: Financial support by the Motor Neurone Disease Association is provided across individuals and across boroughs regardless of their socioeconomic circumstances. Differences that benefits women and younger patients were detected.
format Online
Article
Text
id pubmed-6377508
institution National Center for Biotechnology Information
language English
publishDate 2019
publisher BMJ Publishing Group
record_format MEDLINE/PubMed
spelling pubmed-63775082019-03-05 Charity financial support to motor neuron disease (MND) patients in Greater London: the impact of patients’ socioeconomic status—a cross-sectional study Gkiouleka, Anna Manning, Alison Smith, Dianna Malaspina, Andrea Gallo, Valentina BMJ Open Epidemiology OBJECTIVE: There is an immense socioeconomic burden for both the patients with motor neuron disease (MND) and their families. The aim of this study is to evaluate the extent to which the provision offered by the Motor Neurone Disease Association is distributed among patients with MND living in the ethnically and socially diverse area of Greater London, according to the patients’ socioeconomic situation and needs. SETTING: Greater London, where age and sex-adjusted prevalence rates of MND in 2016 were calculated. PARTICIPANTS: Prevalent MND cases in Greater London, using anonymised data extracted from the Association’s database. EXPOSURE: Demographic and socioeconomic characteristics PRIMARY AND SECONDARY OUTCOME MEASURES: Receiving a Motor Neurone Disease Association grant, and the amount of money received. RESULTS: 396 individuals with amyotrophic lateral sclerosis were detected, the age-specific and sex-specific prevalence of MND was 4.02 per 100 000 inhabitants, higher among men (5.13 per 100 000) than women (3.01 per 100 000). Men were statistically significantly 40% less likely to receive a grant compared with women; among grant recipients, the younger the age of the participant, the higher the size of the grant received. The Index of Multiple Deprivation was not associated with either receiving a grant nor the amount of money received, among recipients. CONCLUSION: Financial support by the Motor Neurone Disease Association is provided across individuals and across boroughs regardless of their socioeconomic circumstances. Differences that benefits women and younger patients were detected. BMJ Publishing Group 2019-02-12 /pmc/articles/PMC6377508/ /pubmed/30760512 http://dx.doi.org/10.1136/bmjopen-2018-022462 Text en © Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY. Published by BMJ. This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made. See: https://creativecommons.org/licenses/by/4.0/.
spellingShingle Epidemiology
Gkiouleka, Anna
Manning, Alison
Smith, Dianna
Malaspina, Andrea
Gallo, Valentina
Charity financial support to motor neuron disease (MND) patients in Greater London: the impact of patients’ socioeconomic status—a cross-sectional study
title Charity financial support to motor neuron disease (MND) patients in Greater London: the impact of patients’ socioeconomic status—a cross-sectional study
title_full Charity financial support to motor neuron disease (MND) patients in Greater London: the impact of patients’ socioeconomic status—a cross-sectional study
title_fullStr Charity financial support to motor neuron disease (MND) patients in Greater London: the impact of patients’ socioeconomic status—a cross-sectional study
title_full_unstemmed Charity financial support to motor neuron disease (MND) patients in Greater London: the impact of patients’ socioeconomic status—a cross-sectional study
title_short Charity financial support to motor neuron disease (MND) patients in Greater London: the impact of patients’ socioeconomic status—a cross-sectional study
title_sort charity financial support to motor neuron disease (mnd) patients in greater london: the impact of patients’ socioeconomic status—a cross-sectional study
topic Epidemiology
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6377508/
https://www.ncbi.nlm.nih.gov/pubmed/30760512
http://dx.doi.org/10.1136/bmjopen-2018-022462
work_keys_str_mv AT gkioulekaanna charityfinancialsupporttomotorneurondiseasemndpatientsingreaterlondontheimpactofpatientssocioeconomicstatusacrosssectionalstudy
AT manningalison charityfinancialsupporttomotorneurondiseasemndpatientsingreaterlondontheimpactofpatientssocioeconomicstatusacrosssectionalstudy
AT smithdianna charityfinancialsupporttomotorneurondiseasemndpatientsingreaterlondontheimpactofpatientssocioeconomicstatusacrosssectionalstudy
AT malaspinaandrea charityfinancialsupporttomotorneurondiseasemndpatientsingreaterlondontheimpactofpatientssocioeconomicstatusacrosssectionalstudy
AT gallovalentina charityfinancialsupporttomotorneurondiseasemndpatientsingreaterlondontheimpactofpatientssocioeconomicstatusacrosssectionalstudy