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A qualitative study of the impact of plexiform neurofibromas on need fulfilment in adults with neurofibromatosis type 1

OBJECTIVE: To explore the impact of plexiform neurofibromas on the lives of adults with neurofibromatosis type 1. BACKGROUND: Neurofibromatosis type 1 is a complex neurogenetic syndrome that affects many aspects of health and functioning. A common manifestation of neurofibromatosis type 1 is plexifo...

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Detalles Bibliográficos
Autores principales:	Heaney, Alice, Wilburn, Jeanette, Langmead, Shannon, Blakeley, Jaishri, Huson, Susan, Jim, Carly, McKenna, Stephen P
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	SAGE Publications 2019
Materias:	Original Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6378462/ https://www.ncbi.nlm.nih.gov/pubmed/30800298 http://dx.doi.org/10.1177/2050312119829680

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