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What Matters at the End of Life: A Qualitative Study of Older Peoples Perspectives in Southern Denmark

What matters at the end of life (EOL) among the older population in Denmark is poorly investigated. We used focus groups and in-depth interviews, to identify perspectives within the EOL, along with what influences resuscitation, decision making, and other treatment preferences. We included eligible...

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Detalles Bibliográficos
Autores principales: Hanson, Stine, Brabrand, Mikkel, Lassen, Annmarie T., Ryg, Jesper, Nielsen, Dorthe S.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6381425/
https://www.ncbi.nlm.nih.gov/pubmed/30815513
http://dx.doi.org/10.1177/2333721419830198
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author Hanson, Stine
Brabrand, Mikkel
Lassen, Annmarie T.
Ryg, Jesper
Nielsen, Dorthe S.
author_facet Hanson, Stine
Brabrand, Mikkel
Lassen, Annmarie T.
Ryg, Jesper
Nielsen, Dorthe S.
author_sort Hanson, Stine
collection PubMed
description What matters at the end of life (EOL) among the older population in Denmark is poorly investigated. We used focus groups and in-depth interviews, to identify perspectives within the EOL, along with what influences resuscitation, decision making, and other treatment preferences. We included eligible participants aged ≥65 years in the Region of Southern Denmark. Five focus groups and nine in-depth interviews were conducted, in total 31 participants. We found a general willingness to discuss EOL, and experiences of the process of dying were present among all participants. Three themes emerged during the analysis: (a) Being independent is crucial for the future, (b) Handling and talking about the EOL, and (c) Conditions in Everyday Life are Significant. Life experiences seemed to affect the degree of reflection of EOL and the decision-making process. Knowing your population of interest is crucial, when developing an approach or using an advance care plan from another setting.
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spelling pubmed-63814252019-02-27 What Matters at the End of Life: A Qualitative Study of Older Peoples Perspectives in Southern Denmark Hanson, Stine Brabrand, Mikkel Lassen, Annmarie T. Ryg, Jesper Nielsen, Dorthe S. Gerontol Geriatr Med Article What matters at the end of life (EOL) among the older population in Denmark is poorly investigated. We used focus groups and in-depth interviews, to identify perspectives within the EOL, along with what influences resuscitation, decision making, and other treatment preferences. We included eligible participants aged ≥65 years in the Region of Southern Denmark. Five focus groups and nine in-depth interviews were conducted, in total 31 participants. We found a general willingness to discuss EOL, and experiences of the process of dying were present among all participants. Three themes emerged during the analysis: (a) Being independent is crucial for the future, (b) Handling and talking about the EOL, and (c) Conditions in Everyday Life are Significant. Life experiences seemed to affect the degree of reflection of EOL and the decision-making process. Knowing your population of interest is crucial, when developing an approach or using an advance care plan from another setting. SAGE Publications 2019-02-19 /pmc/articles/PMC6381425/ /pubmed/30815513 http://dx.doi.org/10.1177/2333721419830198 Text en © The Author(s) 2019 http://www.creativecommons.org/licenses/by-nc/4.0/ This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (http://www.creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Article
Hanson, Stine
Brabrand, Mikkel
Lassen, Annmarie T.
Ryg, Jesper
Nielsen, Dorthe S.
What Matters at the End of Life: A Qualitative Study of Older Peoples Perspectives in Southern Denmark
title What Matters at the End of Life: A Qualitative Study of Older Peoples Perspectives in Southern Denmark
title_full What Matters at the End of Life: A Qualitative Study of Older Peoples Perspectives in Southern Denmark
title_fullStr What Matters at the End of Life: A Qualitative Study of Older Peoples Perspectives in Southern Denmark
title_full_unstemmed What Matters at the End of Life: A Qualitative Study of Older Peoples Perspectives in Southern Denmark
title_short What Matters at the End of Life: A Qualitative Study of Older Peoples Perspectives in Southern Denmark
title_sort what matters at the end of life: a qualitative study of older peoples perspectives in southern denmark
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6381425/
https://www.ncbi.nlm.nih.gov/pubmed/30815513
http://dx.doi.org/10.1177/2333721419830198
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