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Open data and public health

This article provides an overview of the intersection of open data and public health by first defining open government data, public health data, and other key concepts and relevant terminologies. There are differing perceptions on the urgency and importance of the openness of public health data. It...

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Autores principales: D'Agostino, Marcelo, Samuel, Noah O., Sarol, Maria Janina, de Cosio, Federico G., Marti, Myrna, Luo, Tianyu, Brooks, Ian, Espinal, Marcos
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Organización Panamericana de la Salud 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6386141/
https://www.ncbi.nlm.nih.gov/pubmed/31093094
http://dx.doi.org/10.26633/RPSP.2018.66
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author D'Agostino, Marcelo
Samuel, Noah O.
Sarol, Maria Janina
de Cosio, Federico G.
Marti, Myrna
Luo, Tianyu
Brooks, Ian
Espinal, Marcos
author_facet D'Agostino, Marcelo
Samuel, Noah O.
Sarol, Maria Janina
de Cosio, Federico G.
Marti, Myrna
Luo, Tianyu
Brooks, Ian
Espinal, Marcos
author_sort D'Agostino, Marcelo
collection PubMed
description This article provides an overview of the intersection of open data and public health by first defining open government data, public health data, and other key concepts and relevant terminologies. There are differing perceptions on the urgency and importance of the openness of public health data. It has been established that disease outbreaks such as happened during the Ebola and Zika virus epidemics are indicative of the need for countries to develop a framework that will provide guidance for the management of public health data. Such a framework should ensure that data collected during public health emergencies are accessible to the appropriate authorities and in a form that can help with timely decision-making during such public health crises. In this article, we highlight available open data policies across many countries, including in the Americas. Our analysis shows that there are currently no articulated policy guidelines for the collection and management of public health data across many countries, especially in Latin America. We propose that any national data governance strategy must address potential benefits, possible risks, examples of data that could be shared, and the attributes of such data. Finally, we stress that the key concern in the Americas should be the development of regional frameworks for open data in public health that can be adopted or adapted by each country through appropriate national or subnational policies and strategies.
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spelling pubmed-63861412019-05-15 Open data and public health D'Agostino, Marcelo Samuel, Noah O. Sarol, Maria Janina de Cosio, Federico G. Marti, Myrna Luo, Tianyu Brooks, Ian Espinal, Marcos Rev Panam Salud Publica Review This article provides an overview of the intersection of open data and public health by first defining open government data, public health data, and other key concepts and relevant terminologies. There are differing perceptions on the urgency and importance of the openness of public health data. It has been established that disease outbreaks such as happened during the Ebola and Zika virus epidemics are indicative of the need for countries to develop a framework that will provide guidance for the management of public health data. Such a framework should ensure that data collected during public health emergencies are accessible to the appropriate authorities and in a form that can help with timely decision-making during such public health crises. In this article, we highlight available open data policies across many countries, including in the Americas. Our analysis shows that there are currently no articulated policy guidelines for the collection and management of public health data across many countries, especially in Latin America. We propose that any national data governance strategy must address potential benefits, possible risks, examples of data that could be shared, and the attributes of such data. Finally, we stress that the key concern in the Americas should be the development of regional frameworks for open data in public health that can be adopted or adapted by each country through appropriate national or subnational policies and strategies. Organización Panamericana de la Salud 2018-06-05 /pmc/articles/PMC6386141/ /pubmed/31093094 http://dx.doi.org/10.26633/RPSP.2018.66 Text en https://creativecommons.org/licenses/by-nc-nd/3.0/igo/legalcode This is an open access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs 3.0 IGO License, which permits use, distribution, and reproduction in any medium, provided the original work is properly cited. No modifications or commercial use of this article are permitted. In any reproduction of this article there should not be any suggestion that PAHO or this article endorse any specific organization or products. The use of the PAHO logo is not permitted. This notice should be preserved along with the article's original URL.
spellingShingle Review
D'Agostino, Marcelo
Samuel, Noah O.
Sarol, Maria Janina
de Cosio, Federico G.
Marti, Myrna
Luo, Tianyu
Brooks, Ian
Espinal, Marcos
Open data and public health
title Open data and public health
title_full Open data and public health
title_fullStr Open data and public health
title_full_unstemmed Open data and public health
title_short Open data and public health
title_sort open data and public health
topic Review
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6386141/
https://www.ncbi.nlm.nih.gov/pubmed/31093094
http://dx.doi.org/10.26633/RPSP.2018.66
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